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Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region ForumsA small victory-Crohn's is a mother fucker-insurance has now agreed I need chemo every month
instead of every 5 weeks.
Crohn's disease is a mother fucker
Basically I have a 3 week life is good span then the week before chemo/infusion really sucks and then it takes about a week after to start feeling okay so out of 5 weeks, I get 3 good weeks.
My doctor has been fighting for 2 years to put me on a 4 week plan. Insurance has said no for all that time.
UNTIL TODAY.
They approved monthly chemo at least until Dec to see if it makes a difference.
CaliforniaPeggy
(149,534 posts)What great hopeful news!
I am thrilled for you, and I hope this will make your life much better.
demtenjeep
(31,997 posts)You have been there since the start of this diagnosis and uplifting me at times when I have felt the lowest.
You always have the best things to say when I need them.
Thank you so much.
CaliforniaPeggy
(149,534 posts)democrank
(11,088 posts)Many people care.
onecaliberal
(32,786 posts)badhair77
(4,210 posts)Two years is a long time to wait but Im glad you and your doctor finally met with success. Good luck with your treatment. Keep us updated. Good vibes are going your way from the badhair household.
demtenjeep
(31,997 posts)instead of the constant up and down
Sophia4
(3,515 posts)RestoreAmerica2020
(3,434 posts)SemiHalfling
(53 posts)New to posting here, been reading DU for about a year now. I was thinking about joining but didnt know where to start until I saw your post.
Im in a similar boat here, 10th year of battling Crohns, diagnosed at 15. Its been infuriatingly persistent. I have a biologic infusion every 8 weeks, and take a new immunosuppressant twice a day, nothing else before showed meaningful results.
Insurance companies (normally) wont allow certain treatments to be prescribed until youve tried and failed all the treatments on their list. I think its called step therapy. Sometimes I wonder if I couldve avoided having a permanent ileostomy if they had been more aggressive in the early stages of mine. I just hope Orange Satan doesnt put us into a recession/depression/anything worse, theres only so much some of us can do to prepare for disasters of that scale, meds and supplies are expensive.
Anyway, dont neglect anti-nausea meds, and keep eating, drinking, and moving around as best you can. Stay strong!
a kennedy
(29,618 posts)and it complicated EVERY line of attack of her cancer treatment. Horrible, horrible disease, and FAWK the insurance. Prayers, positive vibes, and love being sent your way.