General Discussion
Related: Editorials & Other Articles, Issue Forums, Alliance Forums, Region Forums❤️ A request for positive energy, prayers, etc. My husband's surgery is this morning.❤️
My husband, KT--one of the kindest, most generous, loving men on earth--is due to arrive at the Perelman Center in Philly at 7:30am tomorrow, Tuesday, May 25, with surgery commencing probably around 9:30am. Hes having a prostatectomy due to a particularly nasty case of prostate cancer with which he was diagnosed in late March.
Whomever among you so inclined, kindly offer up whatever variety of positive vibes and healing energy you wish: lit candles, metta meditations, prayers, incantations, etc.
My mother's sister died suddenly in October. My father died in October of pancreatic cancer. My brother died on December 26th in a tragic accident. If anyone's got any positive vibes left after sending some to my husband, I'd appreciate a few sent my way, as well.
Thank you, fellow DUers, for your kindness in times of need.
LetMyPeopleVote
(145,345 posts)Dark n Stormy Knight
(9,771 posts)Thank you.
littlemissmartypants
(22,695 posts)Dark n Stormy Knight
(9,771 posts)Many thanks.
CaliforniaPeggy
(149,642 posts)I so hope that all will go well and that you will share many more years of wedded bliss with him!
Dark n Stormy Knight
(9,771 posts)From one coast back to another, I send my gratitude, my dear California Peggy.
Demovictory9
(32,457 posts)Dark n Stormy Knight
(9,771 posts)Thank you. I strive to believe it will.
electric_blue68
(14,915 posts)Dark n Stormy Knight
(9,771 posts)That's just what we need. Your good wishes are much appreciated!
spooky3
(34,461 posts)Dark n Stormy Knight
(9,771 posts)babydollhead
(2,231 posts)breathe in and feel your lungs fill with air. deeply.
breathe out and feel your lungs empty and let it all out with a sigh. right here, right now, peace to you . peace to your husband.
Dark n Stormy Knight
(9,771 posts)Thank you for that good advice. When I was doing yoga most days of the week, I knew how to breathe that way. So much has fallen away over the past year. Yoga class was one of the things I lost. But one it's possible to get back.
I will close my eyes and think back to being on my mat. I will try to breathe in that calming way.
❤️❤️❤️❤️❤️❤️❤️
questionseverything
(9,656 posts)💐
Good vibes to you and hubby!
Dark n Stormy Knight
(9,771 posts)Thank you.
ShazzieB
(16,429 posts)Dark n Stormy Knight
(9,771 posts)Much appreciated.
cayugafalls
(5,641 posts)Be kind to yourself. Your love for your husband is an inspiration to all.
Shower him with positivity and love, you are a hero.
Take him in your arms, look him deeply in the eyes and tell him you love him.
❤️❤️❤️❤️❤️❤️
Know that you are loved. ❤️❤️
Dark n Stormy Knight
(9,771 posts)And your advice is righteous.
Thank you for taking the time to comfort me and to send good vibes.
❤️❤️❤️❤️❤️❤️❤️
salin
(48,955 posts)Dark n Stormy Knight
(9,771 posts)❤️❤️❤️❤️❤️❤️❤️
blogslug
(38,002 posts)Good thoughts for you and yours.
Dark n Stormy Knight
(9,771 posts)Thank you.
wyn borkins
(1,109 posts)I hope for your husband as well as for you that this procedure will be without complication, and that recovery will be speedy and complete.
Dark n Stormy Knight
(9,771 posts)Thanks very much.
pazzyanne
(6,556 posts)Last edited Tue May 25, 2021, 06:19 AM - Edit history (1)
and prayers for strength and support for you. You have had far more than your fair share of family stressors in the last several months. Please take good care of yourself, dear Dark n Stormy Knight!
Dark n Stormy Knight
(9,771 posts)I know that many people have hard it even worse over the past year or more and I feel for them and count my blessings. But, I've had a lot of very difficult years--bad case of Lyme disease not least among the difficulties--and I have to say that what doesn't kill us doesn't necessarily make you stronger. Sometimes it just wears you down.
I will try to receive the many prayers, thoughts, vibes, people are sending. I will try to be strong.
❤️❤️❤️
canetoad
(17,169 posts)A stick of sandalwood incense for KT. I believe it has various properties, I find the aroma reassuring.
to both of you.
Dark n Stormy Knight
(9,771 posts)I was cleaning out and reorganizing some things recently and came across a couple of old incense burners and wondered where one gets that sort of thing these days. I miss that experience.
Thanks for your support.
appalachiablue
(41,149 posts)to you and your dear husband. May all go well and his recovery steady.
With many challenges lately, please try to take care and stay strong as possible. You seem like a real survivor and loving person.
Peace and Hugs at this time.
Let us know how things are when you feel like it.
Dark n Stormy Knight
(9,771 posts)I honestly don't think I will survive. But, I'll keep your kind words in mind and try to gather strength.
❤️❤️❤️❤️❤️❤️❤️
orleans
(34,061 posts)to keep you safe and well, to help your husband become well and keep him with you.
and to the spirits of those you loved and who love you--to stay with you and keep you strong
we love you. we are with you in our thoughts
Dark n Stormy Knight
(9,771 posts)Your words warm my heart. Thank you for your kindness.
Love and all the best to you.
AKwannabe
(5,666 posts)Girl POWER!
💥💥💥💥💥💥💥💥
Dark n Stormy Knight
(9,771 posts)Thank you.
❤️❤️❤️❤️❤️❤️❤️
SWBTATTReg
(22,144 posts)survive and have a wonderful and happy life w/ his loved ones (and me) for quite a few years afterwards (at least 15 years or so) and died from from other causes (in his upper 80s).
Rhiannon12866
(205,552 posts)I've seen them work miracles here over the years and it's your worthy husband's turn to receive their magic...
Ka-Dinh Oy
(11,686 posts)SheltieLover
(57,073 posts)Peace to you & hubby, wisdom & guidance for his surgeons & caretakers, and a quick, complete healing for him.
Pleaae keep us posted, as able.
Hugs! 💗🌺
Beacool
(30,250 posts)He'll be in my thoughts and prayers.
Hekate
(90,721 posts)Fla Dem
(23,695 posts)Youve had a difficult period of time within the past year. Take care of yourself, and all the best to your husband that he comes through this latest challenge a winner!
🥰
FuzzyRabbit
(1,967 posts)Both were successful and they each resumed their lives as fully as before.
DET
(1,323 posts)I signed into DU after several years of enjoyable lurking to respond to this thread. Dont worry, DarknStormy; your husband should be just fine. If your husband is having a prostatectomy, then his PC has presumably not metasticized and is probably still curable. Assuming your husband had a biopsy (standard procedure for a high PSA and/or abnormal manual exam), then you need to ask the surgeon what your husbands Gleason score is (probably in your case somewhere between six and nine) and his PSA, if you dont already know it. Hopefully, youve also had a bone scan and a CT scan to determine if there are visible metastasis outside of the prostate. PC has a very high cure rate if it is localized; if it has metacized, however, there is at present no cure. But even stage 4 PC can be managed for a relatively long time with proper treatment. It would help if you could clarify what you mean by a particularly nasty case of PC.
I know that this is a terrifying new world for you, but I would encourage you to educate yourself as much as you can on this disease. There has been tremendous progress in the understanding and treatment of PC just in the last ten years. The standard of care for advanced PC is literally changing as we speak. I hate to say it, but you have to keep on top of this since your doctor may not be. Good luck tomorrow and please keep us posted.
CaliforniaPeggy
(149,642 posts)It means a lot that you signed up just to support Dark N Stormy Night.
I hope that you will find DU a home and a place to talk to like-minded folks.
Again, Welcome!
DET
(1,323 posts)Thank you! DU has been a haven from the insanity of the last few years.
Disaffected
(4,557 posts)from a prostatectomy patient of about 15 years ago. As DET mentioned, if they are doing the procedure, the docs believe the PC has not spread outside the gland itself and, if so, the prospects for a cure are very good. If the surgery does not detect any mets, the follow up will be routine PSA tests which will continue to read "Undetectable" if no remaining prostate tissue is present anywhere.
soldierant
(6,890 posts)and I'll pass along advice from her ... try not to laugh if his private parts are discolored. He's suffering enough anyway and needs his dignoty as much as pissible.
Dark n Stormy Knight
(9,771 posts)I haven't been able to reply to most of the lovely posts here, but they are appreciated. I did want to respond to you in case anyone else is curious about those details.
I said "particularly nasty" to indicate that it's not one of those cute and cuddly cancers so many people seem to have heard about that sit politely in the prostate of a host who dies of something else before it can get up the gumption to cause any real trouble.
KT's Gleason score was determined to be a 9 at the time of the biopsy, which was on March 11th, though he didn't get the results until the follow-up appointment on March 31st. We wanted him to have the surgery almost immediately, but of course it doesn't work that way. So much time for it to have spread between then and now!
History of KTs PSA Test Results compiled after the fact:
2018-10-03: GP 3.7 Ultrasound & some blood tests ordered. Not to worry, says the doc. Just take FloMax.
2020-11-19: GP's PA 5.7 PA called to order a new glucose test, no mention of the PSA. Grrrrrrr.
We had to find a new GP because that one was switching to a "concierge" model. To continue with his practice, each person would have to pay nearly $2000 annually. That on top of your health insurance premiums, co-pays, etc.
2021-01-07: 5.8 Ordered in late December by our new GP who suggested that more should have been done by our previous GP and strongly recommended KT see a urologist, which led to the biopsy, and the diagnosis.
2021-05-10: Same GP 7.2 ordered upon our request. We were bothered by the fact that in all of the appointments KT had to discuss the stage of the cancer and treatment options, they were going by the PSA from late 2020. Though, as it couldn't speed up his surgery date and only served to alarm us at the increase, we're not sure why we requested it.
Updates on surgery here: https://www.democraticunderground.com/100215466368
DET
(1,323 posts)Im so glad your husbands surgery went well. My husband is a Gleason 9 as well, PSA 77 upon biopsy almost two years ago. It sounds like your husband is another man who slipped through the cracks through a combination of doctor incompetence and a disastrous decision by a Government oversight board (US Preventive Services Task Force) to discontinue routine PSA testing for about eight years because - wait for it - it resulted in too many biopsies. The result has been a big increase in men initially presenting with Stage 4 PC, including my husband. The Task Force has finally modified their recommendations to offer men the choice of an annual PSA test. To any men or wives who may be reading this, I cant emphasize enough how important it is to have a PSA test as part of your annual physical. If your doctor says dont bother, then find a new doctor. If he says youre too young, dont believe it. Ive been in contact with a number of men who have Stage 4 PC in their forties. Sadly, the youngest patients seem to have the worst prognosis.
It looks like your husbands PSA test in 2018 came in just under the limit at which a biopsy is generally recommended. Then it took the doctor two years to order another PSA test, the results of which you apparently were not initially informed, and which should have resulted in a biopsy at the time. Unbelievable. And I am astonished that it took three weeks to inform you of the results of the biopsy.
As you and I are now aware, you have to be proactive when dealing with your doctors. It sounds like you caught the cancer before it spread outside the prostate gland, but Gleason 9 is aggressive. I would imagine youll be having frequent blood tests (e.g., every three months), at a minimum. I dont know the standard of care for localized, high grade PC, but I would think that you will want to be in contact with the most highly rated genitourinary medical oncologist in your area. Urologists are fine for surgery, but they are not great for ongoing care.
One more thing...I fully understand the sheer terror that you are experiencing right now, but it would really help if you could find a way to get it under control (exercise, yoga, antidepressants, etc.), or the stress and anger will literally drive you crazy. In any case, feel free to contact me if you need support. Meanwhile, congrats on a successful surgery!
Dark n Stormy Knight
(9,771 posts)My husband says he sure wishes he would have been told to get his PSA checked as often as he was reminded to get a colonoscopy. Not to diminish the importance of colonoscopies, but ffs, so are prostate cancer screenings.
I can't recall if I said this earlier here, but I'm the type of person who would have followed up on this if I'd known to. But, after the first elevated PSA, when the ultrasound showed nothing, we were so relieved that the doc said it was basically just a slightly enlarged prostate, not unusual for men past 60, and FloMax would take care of it.
We believe the doctor should have said, Yes, the negative results of the ultrasound is good news, HOWEVER, this is something that we need to be vigilant about and follow up AT LEAST yearly with PSA checks!
As for the three week wait after the biopsy--it was just that it was the soonest appointment available at the closest office to us. And they don't give results over the phone. WHY NOT???!!!
Of course, we didn't know that at the time. My husband is such an optimistic guy that, while he'd have preferred it sooner, he didn't believe the delay was going to turn out to have been a problem. In his sweetly naive way, he said that if he had cancer, surely they would call him. I told him I didn't believe that was the case, but didn't push to say, Why don't you call them and ask about the results (which would have done no good thanks to their stupid policy) or to see if another of their offices could have seen him sooner.
Uncharacteristically, I decided to believe the biopsy would show there was nothing serious going on. The past year or more of very difficult things happening in our lives had me in kind of a daze, and having stopped doing many of the things that helped, like meditation, yoga and other exercise, impaired me in many ways.
I hate to admit this, but I also think I had some stupid belief that the odds of another awful thing happening in our lives were so impossibly low...
Anyway, of course you're right--I do need to get back to the things that helped me manage my stress. And thank you for the suggestion regarding finding a genitourinary medical oncologist for my husband.
Forgive me if I missed it, but I don't think you said if your husband had surgery and/or radiation therapy and how his condition responded to treatment. I hope he's doing well.
bearssoapbox
(1,408 posts)ailsagirl
(22,897 posts)TrollBuster9090
(5,954 posts)a kennedy
(29,675 posts)woodsprite
(11,916 posts)For healing, peace, and strength,and guidance for the drs and staff taking care of him.
LiberalLoner
(9,762 posts)🙏🙏🙏❤️❤️❤️🌹🌹🌹
I hope all goes well and he has a speedy recovery!
electric_blue68
(14,915 posts)been through all kinds of hell recently.
An extra dose of )))strengh((( your way, too.
Demsrule86
(68,600 posts)I hope all goes well...good hospitals in Philly.
FeelingBlue
(681 posts)A few minutes ago. May he be cancer free by noon.
🌺❤️❤️❤️❤️❤️❤️🌺
spanone
(135,847 posts)bobnicewander
(805 posts)of you have just been added to all the rest that have been sent.
Bettie
(16,111 posts)and he recovers quickly and fully.
lark
(23,123 posts)Hope everything goes well!
MLAA
(17,300 posts)💖💖💖💖💕💕💕💕💞💞💞💞
momta
(4,079 posts)Please let us know how goes.
Duncanpup
(12,863 posts)lpbk2713
(42,760 posts)And for a full and swift recovery.
WinstonSmith4740
(3,056 posts)Walked in your shoes...positive thoughts coming your way.
ratchiweenie
(7,754 posts)mobeau69
(11,147 posts)hwmnbn
(4,279 posts)xxqqqzme
(14,887 posts)husband and you.
benfranklin1776
(6,448 posts)You definitely deserve some counterbalancing good things to happen after all youve been through 🫂
JPPaverage
(508 posts)Here's wishing him all the best. And wishing you and any children, etc. the best as well.
This is supposedly a routine operation, but cancer is nothing to be messed with. Again, best wishes and good vibes to him and you.
seta1950
(932 posts)May all that is positive guide the surgeons hand, and bless him and your husband.
Omaha Steve
(99,665 posts)Gets an MRI Thursday to see how bad his prostate cancer is.
Good luck to you.
OS
Dan
(3,572 posts)BobTheSubgenius
(11,564 posts)...one of our own. Unfortunately, they are also about the best we can manage.
I really wish there was more.
Heartstrings
(7,349 posts)malaise
(269,067 posts)Nevilledog
(51,132 posts)wendyb-NC
(3,328 posts)for both of you, and lifting him up to the healing, restorative light. Blessings.
Cha
(297,333 posts)for your husband, Dark & Stormy Night! 💙
chocolatpi
(7,888 posts)Magoo48
(4,717 posts)Magoo48
(4,717 posts)XanaDUer2
(10,696 posts)Niagara
(7,631 posts)CaptainTruth
(6,594 posts)Cozmo
(1,402 posts)calimary
(81,333 posts)⭐️💐⭐️❤️⭐️🌷⭐️🌞⭐️💪⭐️🌺⭐️🌼⭐️🌈⭐️🌹⭐️
ancianita
(36,109 posts)crickets
(25,981 posts)to you and your husband for an uneventful procedure and speedy recovery. ❤️ ❤️
Unknown Beatle
(2,672 posts)...kindly sent your way for your husband and for you. May your husband have a full and speedy recovery.
Nululu
(842 posts)GoodRaisin
(8,924 posts)My mom died of pancreatic cancer so I can identify with the place you are in. Best wishes for tomorrow.
DFW
(54,414 posts)It sounds like the Grim Reaper has been paying you a few too many visits of late. I know the feeling. My dad was stricken by prostate cancer at age 70 (beat it) and then with pancreatic cancer at 78 (that time the Reaper won).
I hope your husband survives the battle now and the long road to recovery after. I've been there for both the sorrow and the joy of full recuperation. It sounds like you are due for a happy ending for once. Let this be one of those times.
stage left
(2,962 posts)In the world. I hope everything went well for you.
Peregrine Took
(7,415 posts)11 Bravo
(23,926 posts)I had a prostatectomy a couple of years ago (also cancer), and I'm 100% today. I pray you and your husband have a similar outcome. (Also, knowing that he"s having surgery within two months of the diagnosis is a very positive thing.)
barbtries
(28,799 posts)AwakeAtLast
(14,132 posts)Wishing h a good procedure and a great recovery!
spanone
(135,847 posts)Naio
(167 posts)sending 🙏 prayers.
phylny
(8,381 posts)is doing great about 9 years after. His cancer was quite bad - doctor told him if it hadn't been caught, he'd die within two years - and the operation was successful and he is well.
My best to your husband and to you.