There's one population that gets overlooked by an 'everyone will get COVID' mentality
January 26, 2022
7:00 AM ET
Ten-year-old Chase and 11-year-old Carson have alert minds and radiant smiles, but very uncooperative bodies. The two brothers have a rare genetic disorder called MEPAN syndrome. They can't sit, stand, walk or talk. For their parents, Danny and Nikki Miller, this means wheelchairs, electric lifts, diaper changes and spoon feeding.
Before the pandemic, the Marin, Calif., family relied heavily on several types of therapists and individual aids — and the boys' skills were slowly improving. But when COVID struck, all that support went online or stopped entirely. Danny and Nikki struggled to balance their own careers with homeschooling their boys.
Excerpt: Even after the omicron surge ends, COVID-19 will still be with us, and learning to live with it will be a challenge for everyone.
But that challenge will be especially difficult for the roughly 7 million immunocompromised Americans who remain especially vulnerable and will have to keep their guard up much higher than the rest of us.
https://www.npr.org/sections/health-shots/2022/01/26/1075549754/covid-disabled-immunocompromised?utm_campaign=storyshare&utm_source=twitter.com&utm_medium=social