My daughter started her new medication today

[Bombero1956]

It's called Soliris or Eculizumab. She has been diagnosed with Dent's Deposit Disease. The cost of this medication is $17,000 per dose or $409,000 per year. I'm thankful that the hospital and drug company are picking up the cost of this medicine, otherwise she would be looking for a new kidney in 10 years time. Apparently the drug company is trying to find other uses for it.

[LiberalLoner]

1. I hope so much that your daughter will have good health

And I am very happy that you are able to get this life-saving medicine!

[sharp_stick]

2. My wife helped develop that drug

in an earlier life. Best of luck to your daughter I truly hope it's fully effective.

[renate]

11. wow--that's awesome!

Congratulations to your wife--I bet she's thrilled to know it's helping Bombero1956's daughter!

to your wife and to Bombero's family!

[TheWraith]

3. Good luck.

Here's hoping that it works, and also that worst case you have the option of that kidney.

[Magoo48]

4. Best of wishes for your family.....

[NAO]

5. This drug should be nationalized

for reasons of national security.

What makes these companies think they can hold someone's life hostage for that much money?

[jillan]

6. Sending you lots and lots of hugs for you and your daughter.

Hope this medicine is exactly what she needs.

[Liberal_in_LA]

7. glad she's getting the medication she needs

[malaise]

8. Hope it works

[Honeycombe8]

9. Sorry to hear about your daughter, but glad the ins. co./drug co. will pay for it. Wow. How does

a medicine get to be that expensive? Wow.

[area51]

12. +1

"How does a medicine get to be that expensive?"

Especially since our tax dollars are paying for R&D.

[Omaha Steve]

10. Good luck

Keep us up to date. K&R!

OS

[Bombero1956]

13. thanks for all the kind thoughts

and thank your wife sharp for her work in developing this medicine.