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Luminous Animal

(27,310 posts)
Sat Feb 7, 2015, 11:45 PM Feb 2015

Thank fucking hank… my mother finally died.

She's had diagnosed Alzheimer's for 12 years. If we, as a society allowed a compassionate option, she would have chosen death 6 years ago when she still could chew and talk and appreciate wit.

116 replies = new reply since forum marked as read
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Thank fucking hank… my mother finally died. (Original Post) Luminous Animal Feb 2015 OP
Sometimes death is a real blessing. . . BigDemVoter Feb 2015 #1
Father shanti Feb 2015 #13
I am sorry...so sorry... ScreamingMeemie Feb 2015 #2
I am so sorry for your loss! hrmjustin Feb 2015 #3
I understand your relief, cwydro Feb 2015 #4
So sorry for all the hearache and struggle BrotherIvan Feb 2015 #5
am sorry for your loss. marym625 Feb 2015 #6
Sorry for her suffering and yours, Luminous Animal. enough Feb 2015 #7
I wish your mother peace. nt msanthrope Feb 2015 #8
Peace to your mom and to your and yours. uppityperson Feb 2015 #9
So sorry CaptainTruth Feb 2015 #10
I'm so sorry our idiot culture forced you and her to suffer needlessly Triana Feb 2015 #11
I agree with you. As I age, I feel that I should have a choice. Paper Roses Feb 2015 #102
So glad her ordeal is done. And so is yours. calimary Feb 2015 #12
So very sorry for your loss shanti Feb 2015 #14
Sorry for your loss Aerows Feb 2015 #15
I lost my mother recently They_Live Feb 2015 #16
I'm am wholeheartedly recommending this Ramses Feb 2015 #17
. TeeYiYi Feb 2015 #30
Thank you , but this happened many years ago for me. Ramses Feb 2015 #35
Wow. babylonsister Feb 2015 #18
I know LA sheshe2 Feb 2015 #19
I'm glad her suffering is over... giftedgirl77 Feb 2015 #20
... handmade34 Feb 2015 #21
This is the post forest444 Feb 2015 #25
Post removed Post removed Feb 2015 #22
Have you personally dealt with hospice? nruthie Feb 2015 #28
Bullshit. Warpy Feb 2015 #31
Because the loss of faculties is s gradual. My mom was is 3 different care facilities that dealt Luminous Animal Feb 2015 #32
Christ, meet Trailer Hitch... Then why did Art Buchwald check himself out of hospice after 6 months? Hekate Feb 2015 #33
That is totally wrong. You are not eligible to sign up for hospice unless a dr says you uppityperson Feb 2015 #39
That is fully bullshit, and fully counterproductive to the political movement to legalize death with AtheistCrusader Feb 2015 #50
Bullshit. n/t Crunchy Frog Feb 2015 #54
I'm sorry you've taken so much flak on this thread. MelungeonWoman Feb 2015 #59
so untrue Cal Carpenter Feb 2015 #68
Where did you get this nutty info? HERVEPA Feb 2015 #77
People should be allowed to select quality of life over longevity. Downwinder Feb 2015 #23
Very sorry for your loss. DawgHouse Feb 2015 #24
It's always hard to lose a parent... Archae Feb 2015 #26
It was only 3 years for my own mother Warpy Feb 2015 #27
Peace, Luminous Animal KMOD Feb 2015 #29
I just lost my mother to the same disease, this week. Siwsan Feb 2015 #34
Siwsan, Your Mother... Dont call me Shirley Feb 2015 #74
Am sorry for your loss Siwsan... Peace. n/t veness Feb 2015 #94
Peace be with you and yours. I understand with all my heart. Hekate Feb 2015 #36
I'm so sorry. LeftyMom Feb 2015 #37
Judging from my experience in my family, we need to make these arrangements for ourselves enough Feb 2015 #66
I am so sorry for the suffering you (and your mom) went through. SunSeeker Feb 2015 #38
Am so sorry... Peace to you SunSeeker. n/t veness Feb 2015 #93
Thanks. SunSeeker Feb 2015 #95
I am sorry for losing your mom 6 years ago. Glad for you that you could end your grieving process. Blaukraut Feb 2015 #40
Alzheimers/Dementia is the worst affliction anyone can deal with, in my opinion. Thav Feb 2015 #41
My dying grandma, many, many years ago, heavily drugged, metastatic cancer in her brain... hunter Feb 2015 #96
Silent House... MrMickeysMom Feb 2015 #42
That is beautiful. KMOD Feb 2015 #43
Amazing and heartbreaking song. Ken Burch Feb 2015 #46
Thank you Freddie Feb 2015 #83
I'm glad her suffering and indignity are over. Ken Burch Feb 2015 #44
((((((Luminous Animal))))))... TeeYiYi Feb 2015 #45
.... BlancheSplanchnik Feb 2015 #47
Totally Understand! Glad your mom passed out of pain. dballance Feb 2015 #48
Alzheimer's be a cruel mistress. Initech Feb 2015 #49
So many lovely and incredible responses to this thread. I tried to respond to you all personally... Luminous Animal Feb 2015 #51
. TeeYiYi Feb 2015 #55
Very sorry for your loss, L-A. Maynar Feb 2015 #52
I'm so sorry for the end your mother came to. That is horrible. AtheistCrusader Feb 2015 #53
I'm so sorry. My mom passed a year ago this week Beaverhausen Feb 2015 #56
It's tough to lose a relative. ucrdem Feb 2015 #57
I am so sorry. Are_grits_groceries Feb 2015 #58
I am so very sorry for your loss. MelungeonWoman Feb 2015 #60
I'm so sorry LA. I can only imagine how sad and frustrating and difficult and overwhelming it is to seaglass Feb 2015 #61
I'm so sorry, Luminous Animal. polly7 Feb 2015 #62
I'm so sorry sharp_stick Feb 2015 #63
My mom has it tblue Feb 2015 #64
I am glad for her peace and yours. blogslut Feb 2015 #65
I'm very sorry for your loss, Luminous Animal Oilwellian Feb 2015 #67
. ctsnowman Feb 2015 #69
So sorry for what you both had to endure. panader0 Feb 2015 #70
My deepest sympathy to you & your family for your loss. CrispyQ Feb 2015 #71
My deepest sympathies Luminous Animal riderinthestorm Feb 2015 #72
Luminous Animal, Your Mother... Dont call me Shirley Feb 2015 #73
My Father had Alzheimer's.. Peacetrain Feb 2015 #75
Peace be with you, Luminous Animal. brer cat Feb 2015 #76
My mother also died of dementia. Coventina Feb 2015 #78
I'm sorry for your loss. Chemisse Feb 2015 #79
Lost my Mom exactly the same way. It was a relief and so bettyellen Feb 2015 #80
I am sorry for your loss Gothmog Feb 2015 #81
Peace be with you Lumious Animal CountAllVotes Feb 2015 #82
RIP Mom. n/t cherokeeprogressive Feb 2015 #84
Peace to you and yours and healing to you. Autumn Feb 2015 #85
Finally she is at peace. peace13 Feb 2015 #86
Sorry for your loss... WinstonSmith4740 Feb 2015 #87
Think it's easier when the loved one had a long illness. lark Feb 2015 #88
My grandmother had octoberlib Feb 2015 #89
One year, one month and two weeks ago, my mother finally passed after 10 years with Alzehimer's Bluenorthwest Feb 2015 #90
I am very sorry that you and your mother had to go through such suffering LeftishBrit Feb 2015 #91
So many of us have been there.. mountain grammy Feb 2015 #92
... shenmue Feb 2015 #97
(((((((Luminous Animal))))))) WillyT Feb 2015 #98
Newt Gingrich and Barack Obama Agree... Thunderbeast Feb 2015 #99
i am sorry that you have lost ur mum Liberal_in_LA Feb 2015 #100
sorry for your loss. Terra Alta Feb 2015 #101
I am so sorry MissDeeds Feb 2015 #103
Very sorry for your loss Shoonra Feb 2015 #104
My condolence - may she rest-in-peace -- n/t mazzarro Feb 2015 #105
New Bill proposed in California dooner Feb 2015 #106
yes. I know the feeling. Warren Stupidity Feb 2015 #107
Yes, my mom only lasted a year or two beyond the point where she could talk, Bossy Monkey Feb 2015 #108
I can't even imagine having to deal with that for such a long time. Blue_In_AK Feb 2015 #109
((((((((((((((((Luminous Animal))))))))))))))) woo me with science Feb 2015 #110
I'm so sorry, LA. Sissyk Feb 2015 #111
I am very sorry for the loss of your mother. femmocrat Feb 2015 #112
My condolences sarge43 Feb 2015 #113
I'm sorry for your loss Stargazer09 Feb 2015 #114
Congratulations. I'm honestly a little jealous. sir pball Feb 2015 #115
I am sorry that you have lost your mother, Curmudgeoness Feb 2015 #116

BigDemVoter

(4,150 posts)
1. Sometimes death is a real blessing. . .
Sat Feb 7, 2015, 11:47 PM
Feb 2015

I know I certainly don't want my life extended just for the sake of extending it with no thought of quality. . .

shanti

(21,675 posts)
13. Father
Sun Feb 8, 2015, 12:09 AM
Feb 2015

had terminal lung cancer, COPD, and was dependent on oxygen. He gasped for breath. It really was a blessing when he fell out of bed, and hit his head. He died shortly afterwards. He would never have wanted to have his life prolonged.

ScreamingMeemie

(68,918 posts)
2. I am sorry...so sorry...
Sat Feb 7, 2015, 11:48 PM
Feb 2015

...for the loss of your mother 6 years ago, and that you had to endure that pain with her for so long. It is an awful, awful thing to watch, and I'm so sorry you had to go through it.

 

cwydro

(51,308 posts)
4. I understand your relief,
Sat Feb 7, 2015, 11:50 PM
Feb 2015

but so sorry for your loss.

I do also understand that the loss occurred years ago.

An awful disease.

BrotherIvan

(9,126 posts)
5. So sorry for all the hearache and struggle
Sat Feb 7, 2015, 11:52 PM
Feb 2015

I hope you do feel some sense of peace about it and I hope you get some time to take care of yourself while you grieve. My thoughts are with you.

marym625

(17,997 posts)
6. am sorry for your loss.
Sat Feb 7, 2015, 11:54 PM
Feb 2015

I know that you lost her, the woman she was, years ago. I am sorry for the years of needless suffering she, you and your family endured.

Absolutely right, we are a nation that truly lacks compassion. We have to change that.

enough

(13,259 posts)
7. Sorry for her suffering and yours, Luminous Animal.
Sat Feb 7, 2015, 11:57 PM
Feb 2015

I also felt huge relief and gratitude when my father died with Alzheimer's. Yes, we need a compassionate option to alleviate the years of completely pointless and unnecessary suffering from this disease.

Hoping your coming years are better. It takes a while to recover.

 

Triana

(22,666 posts)
11. I'm so sorry our idiot culture forced you and her to suffer needlessly
Sun Feb 8, 2015, 12:01 AM
Feb 2015

for so long. I fully support death with dignity laws. They should be the law of the entire land.

Peace to you and yours my friend.

Paper Roses

(7,473 posts)
102. I agree with you. As I age, I feel that I should have a choice.
Sun Feb 8, 2015, 04:33 PM
Feb 2015

If something horrible afflicts me, I want to be able to say, "that's it". There is no reason for society to demand that we prolong suffering for the individual and families. Who does it benefit? Only the providers of end of life care(if you can afford it). This care is at the expense of the person suffering and of their families, not only in mental anguish but financial horror.

We all know that the end will come someday. We should have the option to decide that now is the time.
My sympathy for your loss, what a trial you have been through.

calimary

(81,308 posts)
12. So glad her ordeal is done. And so is yours.
Sun Feb 8, 2015, 12:05 AM
Feb 2015

It's a shame you both had to endure that. I couldn't put it better than anyone else on this thread already has. I'm in complete agreement. We've become entirely too mean, hard-hearted, and utterly devoid of any human compassion. May you have peace, healing, and renewal.

They_Live

(3,233 posts)
16. I lost my mother recently
Sun Feb 8, 2015, 12:17 AM
Feb 2015

and I was so glad she was finally released from her agony. She had cancer that was slowly working up from her lung into her brain. I am sorry for your loss, but happy for your relief.

 

Ramses

(721 posts)
17. I'm am wholeheartedly recommending this
Sun Feb 8, 2015, 12:20 AM
Feb 2015

I had a family member with advanced Alzheimer's. It was no life whatsoever. A shell of a person who became violent and didn't recognize his own wife. He passed one night in restraints to protect himself and other.

The cause of death with asphyxiation. He literally forgot to breathe. His brain was so ravaged that he didn't remember how to breathe. It advanced to affect the autonomic nervous system. A hell of a way to die and a travesty to the entire family. Nothing but sympathy for you.

 

Ramses

(721 posts)
35. Thank you , but this happened many years ago for me.
Sun Feb 8, 2015, 01:00 AM
Feb 2015

This should be respectfully dedicated to Luminous Animal. I do thank you though for your response.

Well wishes and positive thoughts to Luminous Animal right now.

babylonsister

(171,070 posts)
18. Wow.
Sun Feb 8, 2015, 12:20 AM
Feb 2015

My heart goes out to you. I have never had your experience, but I've heard and read about them. Honesty wins.

sheshe2

(83,789 posts)
19. I know LA
Sun Feb 8, 2015, 12:24 AM
Feb 2015

So very sorry for your loss. I know your pain.

It was way past time for you both. We need a more peaceful, compassionate and dignified way to let our loved ones go. We need a choice.

Intense hugs to you and yours.

May your mom finally rest in peace.

forest444

(5,902 posts)
25. This is the post
Sun Feb 8, 2015, 12:41 AM
Feb 2015

I wish I had thought to contribute to this heartbreaking thread. Just beautiful.

And to Luminous Animal: God bless you and yours.

Response to Luminous Animal (Original post)

nruthie

(466 posts)
28. Have you personally dealt with hospice?
Sun Feb 8, 2015, 12:47 AM
Feb 2015

I do, and I have never heard of them killing you if you aren't dead after the 6 months is up. Most terminal patients are near death by the time hospice steps in to help. An I say thank God for morphine drips.

Warpy

(111,270 posts)
31. Bullshit.
Sun Feb 8, 2015, 12:52 AM
Feb 2015

That shows a total lack of understanding of hospice care.

"Six months to live" is not in a contract, it's a physicians best estimate. There have been people who have rallied and a few have gone into remission and hospice merely discharges them. Others take longer or shorter periods to die. They don't kill patients with morphine, they use it only to treat pain. Alzheimer's patients aren't in pain, not after progressing beyond the point of knowing they're losing it.

However, any hopeless diagnosis should come with a way out. Most people would take great comfort in knowing it was there but not use it. This has been the reality in states that have physician assisted euthanasia laws.

Luminous Animal

(27,310 posts)
32. Because the loss of faculties is s gradual. My mom was is 3 different care facilities that dealt
Sun Feb 8, 2015, 12:54 AM
Feb 2015

with her progressive deterioration. The last one, critical care…. she was so high functioning that they had to put a picture of her on the door to warn visitors not to let her walk out with them.

Three months later, she her functioning brain was gone and she has lived for 7 more years.

Alzheimer's patients and those who take of them have no clue as to when to pull the trigger.

Hekate

(90,714 posts)
33. Christ, meet Trailer Hitch... Then why did Art Buchwald check himself out of hospice after 6 months?
Sun Feb 8, 2015, 12:54 AM
Feb 2015

I think you are beyond inaccurate in your assertion.

http://www.washingtonpost.com/wp-dyn/content/article/2007/01/18/AR2007011800616.html

Art Buchwald, 81, the newspaper humor columnist for more than a half-century whose newfound comic material about death revived his celebrity, died of kidney failure Jan. 17 at his son's home in Washington.

Buchwald, an owlish, cigar-chomping extrovert whose column won the Pulitzer Prize for commentary in 1982, teased death for the past year, after kidney and vascular problems forced doctors to amputate one of his legs just below the knee. Refusing dialysis, in February he entered the Washington Home and Community Hospices, which he described as "a place where you go when you want to go."

Then, amazing himself, his doctors, friends and the scores of reporters who thronged to him for a last goodbye, Buchwald didn't die. His kidneys began to work again. By July, he left hospice for his summer home. "Instead of going straight upstairs, I am going to Martha's Vineyard," he wrote.
>snip<

uppityperson

(115,677 posts)
39. That is totally wrong. You are not eligible to sign up for hospice unless a dr says you
Sun Feb 8, 2015, 01:24 AM
Feb 2015

have only 6 months to live but often people are on longer. Having worked on hospice, as a hospice nurse, saying we kill people in 2 days after 6 months is extremely insulting.

Educate yourself because if that is truly what you believe, you are very wrong.

http://en.wikipedia.org/wiki/Hospice

Hospice care is a type of care and philosophy of care that focuses on the palliation of a chronically ill, terminally ill or seriously ill patient's pain and symptoms, and attending to their emotional and spiritual needs


https://www.hospicenet.org/html/faq.html
1. When should a decision about entering a hospice program be made and who should make it?

At any time during a life-limiting illness, it’s appropriate to discuss all of a patient’s care options, including hospice. By law the decision belongs to the patient. Most hospices accept patients who have a life-expectancy of six months or less and who are referred by their personal physician.

2. Should I wait for our physician to raise the possibility of hospice, or should I raise it first?

The patient and family should feel free to discuss hospice care at any time with their physician, other health care professionals, clergy or friends.

3. Is all hospice care the same?

No. Many communities have more than one hospice. Medicare requires certified hospices provide a basic level of care but the quantity and quality of all services can vary significantly from one hospice to another. To find the best hospice for your needs, ask your doctor, healthcare professionals, clergy, social workers or friends who have received care for a family member. You may want to call or meet with the hospices and ask questions about their services.

4. Can a hospice patient who shows signs of recovery be returned to regular medical treatment?

Certainly. If the patient’s condition improves and the disease seems to be in remission, patients can be discharged from hospice and return to aggressive therapy or go on about their daily life. If the discharged patient should later need to return to hospice care, Medicare and most private insurance will allow additional coverage for this purpose.

AtheistCrusader

(33,982 posts)
50. That is fully bullshit, and fully counterproductive to the political movement to legalize death with
Sun Feb 8, 2015, 02:34 AM
Feb 2015

dignity.

That was a horrible post.

MelungeonWoman

(502 posts)
59. I'm sorry you've taken so much flak on this thread.
Sun Feb 8, 2015, 07:22 AM
Feb 2015

I just went through something very similar with a friend. He was having hospice care at home and it was suggested to his wife to take him to Kobacker House for 5 days of 'respite'. She left him that night fully ambulatory, he was hungry and wanted something to eat, she assumed they would feed him. When she came back the next day he was in a medically induced coma and died after 3 days, I would guess from dehydration. Peace to you.

Cal Carpenter

(4,959 posts)
68. so untrue
Sun Feb 8, 2015, 10:19 AM
Feb 2015

smh

Can't believe you hijacked this thread with such bullshit and you don't even come back to defend yourself or admit how totally fucking wrong you are.

Sorry to the OP for adding to the pile-on on this subthread but having experience with this I just couldn't keep my mouth shut.

Downwinder

(12,869 posts)
23. People should be allowed to select quality of life over longevity.
Sun Feb 8, 2015, 12:31 AM
Feb 2015

If fact many do and are criticized for their "dangerous behavior."

Archae

(46,335 posts)
26. It's always hard to lose a parent...
Sun Feb 8, 2015, 12:41 AM
Feb 2015

(With exceptions, of course.)

But when my Father 5 years ago was told his pancreatic cancer was back, they gave him an option for more chemo, and he told them simply no.
It only would have extended his pain a few months.

A few months later his sister, my aunt, died of a severe stroke with complications.
The hospital wanted to suck her insurance dry.
And they did, she died finally, but was hooked up to so many wires and tubes, and she wasn't there, if you know what I mean.

Warpy

(111,270 posts)
27. It was only 3 years for my own mother
Sun Feb 8, 2015, 12:43 AM
Feb 2015

but I felt much the same way, a massive relief but a massive shock at the same time.

It's insane to force people to wring as much misery out of a prolonged death as possible.

 

KMOD

(7,906 posts)
29. Peace, Luminous Animal
Sun Feb 8, 2015, 12:48 AM
Feb 2015

I don't think people who have never experienced such an event can completely understand the relief when death finally comes.

But many of us do.

Hugs and peace to you.

Siwsan

(26,268 posts)
34. I just lost my mother to the same disease, this week.
Sun Feb 8, 2015, 12:57 AM
Feb 2015

On Wednesday. She was diagnosed with 'dementia', about 5 years ago, and went into a sharp decline right at the first of the year. So, in a way, we were lucky because this was a relatively short nightmare.

My mother's disease was exacerbated by a series of 'dry' strokes, which may be the explanation for the relatively short duration of the disease process. For that I am thankful.

Please accept my sincere condolences.

Hekate

(90,714 posts)
36. Peace be with you and yours. I understand with all my heart.
Sun Feb 8, 2015, 01:01 AM
Feb 2015

I hope to gods that none of our resident life-at-all-costs-this-means-you-want-to-kill-the-disabled folks shows up in this thread. May they simply read and learn the depths and complexities there are to human suffering.

Peace, Luminous, peace.

LeftyMom

(49,212 posts)
37. I'm so sorry.
Sun Feb 8, 2015, 01:07 AM
Feb 2015

There are a handful of words that, as soon as I hear them from a doctor, I'm driving straight over the border to a pharmacia and buying enough opiates (or whatever else will do the trick) to grant myself a quiet and painless exit. That one's the top of the list. Cancer is a close second.

We don't show people the mercy we'd show a sick dog. It's so very fucked up.

enough

(13,259 posts)
66. Judging from my experience in my family, we need to make these arrangements for ourselves
Sun Feb 8, 2015, 10:16 AM
Feb 2015

BEFORE hearing those words from a doctor. And we need to tell someone we trust what we want to do and how we want to do it. By the time you hear that diagnosis, you are very likely not competent to do this for yourself.

SunSeeker

(51,571 posts)
38. I am so sorry for the suffering you (and your mom) went through.
Sun Feb 8, 2015, 01:16 AM
Feb 2015

I hope now that your mom is at peace you will be at peace too.

Although, I know that is easier said than done. It's been years since my mom's slow painful passing. I am still haunted by the look on her face, that hospice...it was hell on earth. I am glad that hell is behind you now. I hope you can find a way to keep it behind you.

Blaukraut

(5,693 posts)
40. I am sorry for losing your mom 6 years ago. Glad for you that you could end your grieving process.
Sun Feb 8, 2015, 01:30 AM
Feb 2015

My mom died last year after suffering from dementia for 5 years. Thankfully, her heart gave out after a pelvic fracture so she didn't have to go through the worst of the dementia. She was in a nursing home for two years already, her disease progressing rapidly. Still, we might have looked at another two or three years of misery for her and us.

You have been grieving the loss of your mom for years, without getting to say a final goodbye. Now you finally can do that and move on.

Thav

(946 posts)
41. Alzheimers/Dementia is the worst affliction anyone can deal with, in my opinion.
Sun Feb 8, 2015, 01:30 AM
Feb 2015

You really lose them twice. I lost my grandpa 3 years ago to it, and he passed away last year. I visited him once about two years ago and said, "Hi Grandpa." He responded, "I'm not your grandpa." That hurt bad.

I'm sorry for your loss, and I hope you remember your mother as she was before the disease.

hunter

(38,317 posts)
96. My dying grandma, many, many years ago, heavily drugged, metastatic cancer in her brain...
Sun Feb 8, 2015, 01:51 PM
Feb 2015

... and everywhere else, insisted I was her father and that I should stop teasing her.

Somehow I managed to choke it down, shift gears and play the part, and she was happy.

She died a few days later.



Still, better than Alzheimer's. My wife's grandma and her family suffered through that, and I know it was worse.



MrMickeysMom

(20,453 posts)
42. Silent House...
Sun Feb 8, 2015, 01:32 AM
Feb 2015

When I hear this song from the Dixie Chicks, it speaks volumes about Alzheimers…



I'm sorry and understand your relief, LA
 

Ken Burch

(50,254 posts)
46. Amazing and heartbreaking song.
Sun Feb 8, 2015, 01:53 AM
Feb 2015

There's also this, by Elvis Costello:




Is it all in that pretty little head of yours?
What goes on in that place in the dark?
Well I used to know a girl and I would have
sworn that her name was Veronica
Well she used to have a carefree mind of her
own and a delicate look in her eye
These days I'm afraid she's not even sure if her
name is Veronica
Chorus:
Do you suppose, that waiting hands on eyes,
Veronica has gone to hide?
And all the time she laughs at those who shout
her name and steal her clothes
Veronica
Veronica
Did the days drag by? Did the favours wane?
Did he roam down the town all the time?
Will you wake from your dream, with a wolf at
the door, reaching out for Veronica
Well it was all of sixty-five years ago
When the world was the street where she lived
And a young man sailed on a ship in the sea
With a picture of Veronica
On the "Empress of India"
And as she closed her eyes upon the world and
picked upon the bones of last week's news
She spoke his name outloud again
Chorus
Veronica sits in her favourite chair and she sits
very quiet and still
And they call her a name that they never get
right and if they don't then nobody else will
But she used to have a carefree mind of her
own, with devilish look in her eye
Saying "You can call me anything you like, but
my name is Veronica"
Chorus

Freddie

(9,267 posts)
83. Thank you
Sun Feb 8, 2015, 12:01 PM
Feb 2015

Huge Elvis fan here, he wrote that song and "That Day is Done" in honor/memory of his beloved grandmother.
I too dealt with the loss of my Dad to dementia, luckily for us it was only 3 "bad" years until a stroke ended his life at 92.

 

Ken Burch

(50,254 posts)
44. I'm glad her suffering and indignity are over.
Sun Feb 8, 2015, 01:46 AM
Feb 2015

May you find healing as you work through both your grief and your fully justified anger.

BlancheSplanchnik

(20,219 posts)
47. ....
Sun Feb 8, 2015, 02:09 AM
Feb 2015

Peace. Finally. For you all.
I wish we could use compassion as our guide.

My Dad drank himself to death...the last couple years I couldn't visit any longer. I told him I couldn't bear to see what he was doing to himself.

 

dballance

(5,756 posts)
48. Totally Understand! Glad your mom passed out of pain.
Sun Feb 8, 2015, 02:15 AM
Feb 2015

We had to watch my father waste away and suffer for months from cancer. We couldn't lay a sheet on his body without it causing him pain.

We wouldn't subject a dog to that kind of suffering. We'd be humane enough to end their suffering.

Fuck all the churches that say ending one's life at a time of one's choice is a sin. It's a sin to make other humans suffer for no reason.

Initech

(100,080 posts)
49. Alzheimer's be a cruel mistress.
Sun Feb 8, 2015, 02:34 AM
Feb 2015

My grandma had Alzheimer's and LBD - and it didn't end well either. That's a horrible way to go and once its over its over. No one should have to suffer like that.

Luminous Animal

(27,310 posts)
51. So many lovely and incredible responses to this thread. I tried to respond to you all personally...
Sun Feb 8, 2015, 02:36 AM
Feb 2015

if I missed anyone, I apologize but please know, every post on this thread means a lot to me.

AtheistCrusader

(33,982 posts)
53. I'm so sorry for the end your mother came to. That is horrible.
Sun Feb 8, 2015, 02:44 AM
Feb 2015

I've gone through that with a parent as well, but fortunately he did not linger long beyond the 'nobody home' barrier. I cannot imagine 6 years of it, and I hope your family has peace at last.

There is a well connected and well financed church with a strong subscriber base that fights tooth and nail to keep an option that any human person would do for a pet, for fuck's sake, fully illegal for the people we love the most. No matter how badly they want it. No matter how much they are suffering. None of that matters to the RCC. When we legalized it here in Washington state, every individual donor in the top 15, and every organization in the top ten donor list, was some tentacle of the catholic church. We even had martin sheen in practically every commercial break, whipping off the glasses he didn't even wear for dramatic effect, lying about the way the law worked to scare voters the other way.

It was a vicious fight, but reason prevailed and I-1000 passed. 3 states in the union have now recognized this fundamental right, and yet... we have a lot of work to do.

Beaverhausen

(24,470 posts)
56. I'm so sorry. My mom passed a year ago this week
Sun Feb 8, 2015, 02:58 AM
Feb 2015

She had Alzheimer's but cancer took her fairly quickly.

Hope you can find peace in your happier memories of her.

ucrdem

(15,512 posts)
57. It's tough to lose a relative.
Sun Feb 8, 2015, 03:02 AM
Feb 2015

I've lost several in the last year and just got back from the ICU where my favorite aunt is lying in a coma that she's not likely to come out of. I have a lot of mixed feeling, sadness and relief and regrets that I didn't spend more time with each one, but in the end you just have to say goodbye and promise to remember them. Anyhow hang in there.

MelungeonWoman

(502 posts)
60. I am so very sorry for your loss.
Sun Feb 8, 2015, 07:28 AM
Feb 2015

My grandmother was just diagnosed with Alzheimer's when she fell and broke her hip, she never recovered from that. Very grateful we were spared the agony you were forced to endure. Peace to you.

seaglass

(8,173 posts)
61. I'm so sorry LA. I can only imagine how sad and frustrating and difficult and overwhelming it is to
Sun Feb 8, 2015, 07:36 AM
Feb 2015

lose a parent in this way. Wishing you and your family peace.

polly7

(20,582 posts)
62. I'm so sorry, Luminous Animal.
Sun Feb 8, 2015, 07:54 AM
Feb 2015
For all that she, and all of you went through and for her loss, no matter what .... I know it must still be a horrible hurt. May your mom finally rest in peace.

sharp_stick

(14,400 posts)
63. I'm so sorry
Sun Feb 8, 2015, 09:20 AM
Feb 2015

My Grandfather had Alzheimer's and "lived" for almost 13 years without knowing who he or anyone else was.

tblue

(16,350 posts)
64. My mom has it
Sun Feb 8, 2015, 09:52 AM
Feb 2015

She's doing very well so far, but I fear for what's coming. My mil had it too and she lived about 10 yrs after her diagnosis. It was a slow and gentle passing, though she spent the last 3 years sleeping and being spoon-fed. Once in a while she uttered a word or two.

So I know what you've been through and I think I totally get what you're saying. I'm so sorry for your loss, and her loss.

blogslut

(38,002 posts)
65. I am glad for her peace and yours.
Sun Feb 8, 2015, 10:03 AM
Feb 2015

I have not been personally affected by Alzheimer's but I had a roommate who worked with patients afflicted with it. She was not one for bitterness but when she spoke of that disease, she could barely contain her anger at it's cruelty.

Oilwellian

(12,647 posts)
67. I'm very sorry for your loss, Luminous Animal
Sun Feb 8, 2015, 10:19 AM
Feb 2015

My father is 89 and has had dementia for the past ten years. I've watched him slowly deteriorating, so I can relate to what you experienced with your mom. It's so hard watching a parent become so vulnerable and helpless.

CrispyQ

(36,478 posts)
71. My deepest sympathy to you & your family for your loss.
Sun Feb 8, 2015, 10:32 AM
Feb 2015

If only we had a compassionate society when it comes to issues of birth & death. Alas, the crazies have been allowed to take over the conversation - all for profit. It's obscene.

Strength to you & your family.

 

riderinthestorm

(23,272 posts)
72. My deepest sympathies Luminous Animal
Sun Feb 8, 2015, 10:37 AM
Feb 2015

Your post is wise and terribly sad at the same time.

Hope you can find some peace now.



Peacetrain

(22,877 posts)
75. My Father had Alzheimer's..
Sun Feb 8, 2015, 11:13 AM
Feb 2015

But it was actually an aneurism that took him from us.. and it was a blessing.. and this is hard to explain to people who have never walked a mile in your shoes or my shoes...

So sorry you had to endure watching your Mom suffer for 12 years with this horrific disease.



brer cat

(24,576 posts)
76. Peace be with you, Luminous Animal.
Sun Feb 8, 2015, 11:18 AM
Feb 2015

Death with dignity is rarely possible with Alzheimer's. I am sorry you and she suffered for so many years.

Coventina

(27,121 posts)
78. My mother also died of dementia.
Sun Feb 8, 2015, 11:23 AM
Feb 2015

It is a fate I would wish on nobody.
Not even the worst human I can imagine.

Not only is it torture for the victim, but for the entire family.

I know I'm preaching to the choir here, but it just can't be said enough.

Chemisse

(30,813 posts)
79. I'm sorry for your loss.
Sun Feb 8, 2015, 11:34 AM
Feb 2015

Whether your actual loss was this week, or 6 years ago.

May she rest in peace at last.

 

bettyellen

(47,209 posts)
80. Lost my Mom exactly the same way. It was a relief and so
Sun Feb 8, 2015, 11:38 AM
Feb 2015

Few friends understood how I'd really lost her many years before. Thank you for this OP.
And hugs if you want them.

 

peace13

(11,076 posts)
86. Finally she is at peace.
Sun Feb 8, 2015, 12:08 PM
Feb 2015

I understand what you are saying here. Take care and be kind to yourself. I send you love and healing energy, Kim

WinstonSmith4740

(3,056 posts)
87. Sorry for your loss...
Sun Feb 8, 2015, 12:12 PM
Feb 2015

but understand your relief. My mom was in the throes of that horrible disease for 3 years when she mercifully passed. Every day was a challenge. Put your feet up...you've earned it.

lark

(23,105 posts)
88. Think it's easier when the loved one had a long illness.
Sun Feb 8, 2015, 12:20 PM
Feb 2015

My dad had cancer for 13 years, off and on, and chemo for 4. He was in such pain, and so out of it, that it was a relief in a way when he passed. Mom had lung issues, we knew that, but the dr's never told us she was terminal and end stage so it was a complete * utter shock when she went into heart and lung failure a day after she'd been walking around, talking about getting back into her Assisted Living apt., felt good and was happy. They had to put her on a vent, but she couldn't come off it because she lungs wouldn't work and we had to make a decision. It was the hardest thing I've ever done and it continues to haunt me. I feel certain we did the right thing but my sister feels like "she" (we) murdered our mom. Mom had 2 living wills with contradictory information, so we were in a horrible place.

 

Bluenorthwest

(45,319 posts)
90. One year, one month and two weeks ago, my mother finally passed after 10 years with Alzehimer's
Sun Feb 8, 2015, 12:41 PM
Feb 2015

I understand all of your post including the relief, the gratefulness for her release. At long last, release. They did not go gentle into that good night, that much we can say....

Thunderbeast

(3,417 posts)
99. Newt Gingrich and Barack Obama Agree...
Sun Feb 8, 2015, 04:02 PM
Feb 2015

Both Gingrich and Obama have called for significant research initiatives into brain and neurological disorders. In his 2012 campaign, Gingrich correctly pointed out that the impacts of brain disorders will bankrupt the health care system as boomers age. In addition, the rising costs of the lost potential and treatment costs for various mental illnesses devastates families and communities. After the election, President Obama made a similar speech.

I wish that Gingrich and Obama had shared a stage to advocate for their common views on the subject. Alzheimer's, Parkinson's, M.S., Schizophrenia, Autism, Bipolar Disorder, PTSD, Depression, and many more horrible diseases may find new treatment strategies based on a foundation of research into neurological disorders.

Families bear a huge burden when these diseases strike close to home. As a society, we may have trouble paying for the millions of folks who are destined to join those needing "memory care". It would be better to unleash the research community to prevent these tragedies.

 

MissDeeds

(7,499 posts)
103. I am so sorry
Sun Feb 8, 2015, 05:52 PM
Feb 2015

for what your mom and you have had to endure, Luminous Animal. Alzheimer's is a brutal disease that claims many victims, other than the one afflicted with the disease. I am glad your mom is free and that you and your family at last have peace.

Many hugs and good wishes to you, and gentle passage to your mom.

Shoonra

(523 posts)
104. Very sorry for your loss
Sun Feb 8, 2015, 05:55 PM
Feb 2015

Very sorry for your loss.

I know it's very chafing to be thinking thoughts like "it's about time" in the very midst of mourning. Time will heal this hurt eventually.

In the meantime, the rest of us should prepare Living Wills and Medical Directives and so forth, in preparation for the inevitable.

dooner

(1,217 posts)
106. New Bill proposed in California
Sun Feb 8, 2015, 06:47 PM
Feb 2015

Anybody who has gone through Alzheimer's with a parent or close family member understands exactly how you feel.
Such a horrible disease. I'm very sorry for you and your family.

I'm relieved that a new bill is being proposed in California, modeled after Oregon's Death with Dignity law
http://www.mercurynews.com/health/ci_27357033/california-bill-would-allow-terminally-ill-end-life
 

Warren Stupidity

(48,181 posts)
107. yes. I know the feeling.
Sun Feb 8, 2015, 07:04 PM
Feb 2015

My mom flunked hospice. She would have liked to have died eight years ago, now she is rotting in bed, unable to do much of anything, fitfully lucid, but unable to die.

I don't even know what the right words are. When my wife's mom finally died after years of Alzheimer's, a complete vegetable brain at the end, we mostly felt overwhelming relief. "Sorry for your loss" isn't the right expression is it?

Bossy Monkey

(15,863 posts)
108. Yes, my mom only lasted a year or two beyond the point where she could talk,
Sun Feb 8, 2015, 07:17 PM
Feb 2015

but given the choice would have chosen to go at least five years before that. (In spite of being Catholic, she always said that if she lost her faculties, she didn't want to be kept alive.) All the same, all condolences. If you're anything like me, you'll find yourself dreaming about her in every stage of her life, sometimes fully alert, sometimes doddering, for years. It's been 11 1/2 years for me; the dreams are finally slowing up. Peace to you and to your family.

Blue_In_AK

(46,436 posts)
109. I can't even imagine having to deal with that for such a long time.
Sun Feb 8, 2015, 07:20 PM
Feb 2015

Even two months after my mother's debilitating stroke was too long for me. Our family was relieved when she had the heart attack that killed her.

That being said, I am sorry for your loss. It's never easy to lose a parent.

sarge43

(28,941 posts)
113. My condolences
Sun Feb 8, 2015, 09:23 PM
Feb 2015

Anyone who says "life at any cost" has never had to pay that bill. I completely understand your relief. I felt the same when my mother's agony was over.

In the days ahead, peace, comfort and the loving memories.

sir pball

(4,743 posts)
115. Congratulations. I'm honestly a little jealous.
Sun Feb 8, 2015, 10:34 PM
Feb 2015

My brilliant, achieved, incredibly bright and engsging mom was diagnosed with early-onset in 2006. She just sort of gave up, by '10 she was in care and I'm hard pressed to get a flicker of a smile from her these days, let alone speech or recognition.

I grieved for her a long time ago, as did the rest of the family. When she finally passes, we will shamelessly celebrate her release

Curmudgeoness

(18,219 posts)
116. I am sorry that you have lost your mother,
Sun Feb 8, 2015, 10:53 PM
Feb 2015

even if you really lost her years ago. I understand just how you feel. There are too many people who need the option to end their life with dignity.

But it is still hard. Peace.

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