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snooper2

(30,151 posts) Tue Jul 14, 2015, 10:12 AM Jul 2015

11-Year-Old Girl 'Allergic' to Sunlight

This made me tear up- strong kid

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11-Year-Old Girl 'Allergic' to Sunlight (Original Post) snooper2 Jul 2015 OP

Can you imagine the frustration ChazII Jul 2015 #1

ChazII

(6,205 posts)

1. Can you imagine the frustration

Reply to snooper2 (Original post)

Tue Jul 14, 2015, 10:22 AM

Jul 2015

and emotional pain that her parents go through? Having friends, family and society react in total disbelief when the parents explain their daughter's condition? I have a son with a plexiform tumor on his face. (Think of the Disney version of the Hunchback.) My heart aches for this family while my soul rejoices that the family is receiving understanding, finally.

edited to add

CHLA is where my son received his diagnosis of neurofibromatosis. The doctors there are the best in my very biased opinion.

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