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3catwoman3

(27,247 posts)
Sat Feb 15, 2025, 02:23 PM Feb 2025

Sometimes appendicitis is a good thing - the proverbial blessing in disguise.

In March of 2023, I developed appendicitis. Initial vague abdominal discomfort that initially felt like hunger pangs. Over several hours, the discomfort became more intense, and gradually began to localize to the classic RLQ (right lower quadrant) of my abdomen. Having pretty much diagnosed myself, I had my husband take me to the ER, where exam and tests confirmed my suspicion.

Because I was (and still am) taking Elixir, a blood thinner, because of atrial fibrillation, surgery had to be delayed for about 36 hours to let the Eliquis clear so I wouldn't bleed out on the table. During that wait, the appendix became gangrenous, despite being on 2 heavy duty antibiotics, so recovery was slow, and complicated by needing an NG (nasogastric tube) tube because my GI activity came to a complete halt. Finally home after 5 days, but with the AFib wildly out of control. Anaesthesia #1

Re-admitted a week later because of the AFib, and spent another week in the hospital. 2 attempts at external cardioversion under anaesthesia were unsuccessful. Home on more cardiac meds than I knew could be taken all at the same time. Anaesthesia #2

April 2023 - successful cardiac ablation to "zap" the over-active areas an the upper heart chamber. Anaesthesia #3

June 2023 - During the initial ER evaluation, the CAT scan showed an "incidental" finding of cysts on the distal (tail-end) portion of my pancreas. Those were biopsied, at which time there were no suspicious findings. Anaesthesia #4

Dec 2023 - follow up CAT scan showed one of the cysts changing from fluid-filled to solid looking, which is not what you want.

March 2023 - robotically-assisted, spleen-sparing distal pancreatectomy. My surgeon, at the University of Illinois/Chicago, is currently considered to be the world's leading robotic surgeon, so I was in very good hands. Diagnosis - pNET - pancreatic neuroendocrine tumor. There were some malignant cells, but completely contained with no spread, and I was told emphatically by 2 different oncologists that there was absolutely no need for chemo, which was a huge relief. Anaesthesia #5 Starting to worry if I'm pushing my luck by having to be put under so many times. Uncomplicated recovery, and home after 5 days.

This kind of pancreatic tumor is completely different from adenocarcinoma, the kind of pancreatic cancer that is usually not diagnosed until really late and is the kind that took the lives of Alex Trebek and Patrick Swayze, and so many others. pNETs can progress but do not become adenocarcinoma.

Dec 2024 - routine follow up CAT scan showed a "plump" lymph node in my right lung, so, once more under anaesthesia for a biopsy. Numerous lymph nodes sampled, and all were clear. Anaesthesia #6 - enough already!

Anyway, the point of this long "organ recital" is that I am very grateful to my appendix for getting infected, because it made possible the incidental finding of the pancreatic cysts and ultimately the diagnosis of the pNET at the earliest possible stage when the management is just periodic surveillance. Hoping it stays that way.

I feel very lucky.

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3catwoman3

(27,247 posts)
2. Thanx. After all my years as a nurse practitioner...
Sat Feb 15, 2025, 02:37 PM
Feb 2025

...it was quite different to be on the other side of the stethoscope, so to speak.

It also reaffirmed my long-held opinion that I will never live anywhere remote or underserved when it comes to health care. My undergrad nursing degree is from the University of Rochester, which is a highly regarded medical center, and it forever set my standard for what I consider acceptable health care.

Diamond_Dog

(37,776 posts)
3. Good grief! You sure were put through the wringer!
Sat Feb 15, 2025, 03:14 PM
Feb 2025

I’m glad you got excellent medical care and everything is good, now. But what an ordeal! I don’t handle anesthesia well, either. Here’s to continuing good health!

3catwoman3

(27,247 posts)
5. Thank you. Fortunately, I handle anaesthesia OK, but each time you have to listen...
Sat Feb 15, 2025, 03:36 PM
Feb 2025

...to the anaesthesiologist list all the risks, and after so many times in a relatively short period, it's hard not to wonder, "Is this going to be the time that I become a statistic?"

Fla Dem

(26,916 posts)
6. Wow! Somethings just work out for the best.
Sat Feb 15, 2025, 03:42 PM
Feb 2025

I'm glad your serious situation was finally diagnosed and treated. Glad you're on the road to better health.

erronis

(20,745 posts)
8. Can I ask what type of insurance you have?
Sat Feb 15, 2025, 04:38 PM
Feb 2025

We all know that Medicare "Advantage" plans may let you suffer without anesthesia...

3catwoman3

(27,247 posts)
15. Medicare (I'm 73 now), and thru my husband's full career as an Air Force pilot...
Sat Feb 15, 2025, 05:58 PM
Feb 2025

...we are fortunate enough to have TriCare For Life. We had very little out-of-pocket expense. Another reason I feel very lucky.

Also, other than the Afib, I was in good shape going in because I've never smoked, don't sunbathe, minimal alcohol consumption, workout twice a week, and have normal blood pressure.

Picaro

(2,126 posts)
9. You are indeed very fortunate
Sat Feb 15, 2025, 04:51 PM
Feb 2025

This sounds horrible and expensive and, yes, terrifying.

But without all this there would have been no chance to find these issues with your pancreas.

Glad that you’re lucky.

summer_in_TX

(3,711 posts)
10. Hindsight allows you to see blessings that probably didn't feel like it at the time.
Sat Feb 15, 2025, 05:07 PM
Feb 2025

Glad you were so blessed!

catchnrelease

(2,088 posts)
11. That is lucky!
Sat Feb 15, 2025, 05:08 PM
Feb 2025

Several years ago the husband of a good friend had appendicitis and while they were preparing to remove it found that one of his kidneys was almost engulfed by cancer. They were able to remove the kidney at the same time as the appendix and he's been clear for way over the 5 year mark now.

Glad you're doing ok now!

bluescribbler

(2,371 posts)
12. My sister has a similar story.
Sat Feb 15, 2025, 05:11 PM
Feb 2025

On her wedding night, she fell on the steps into the hotel. A trip to the ER resulted in a diagnosis of a broken shoulder. A follow up CT scan revealed a haploid valve in her right atrium. She had had a heart murmur since childhood, but it was only when in her sixties was the reason known. Long story short, after a valve replacement, she's as good as new.

Keep up the good work.

TexasBushwhacker

(20,950 posts)
16. Steve Jobs had the same kind of tumor
Sat Feb 15, 2025, 06:58 PM
Feb 2025

If he had gotten surgery right away, he might be alive today. Instead, he tried to treat with diet, herbs and various quackery. What an asshole.

3catwoman3

(27,247 posts)
17. I never for a moment considered not having the surgery.
Sat Feb 15, 2025, 07:28 PM
Feb 2025

Last edited Sun Feb 16, 2025, 03:01 AM - Edit history (1)

Jobs was first diagnosed in 2003, which is right around the time the first ever robotic pancreatectomy was performed (I just looked this up). The robotic approach allows for a much less invasive procedure. I have 6 tiny scars, 3 of which are already barely detectable merely 11 months later. At 73, my bikini days are long over, so the scars are no big deal.

Maybe Jobs was leery about a new-at-the-time procedure or didn't want to have the more major traditional approach. His choice, obviously.

I just wanted the mass out of me ASAP.

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