The DU Lounge
Related: Culture Forums, Support ForumsWhat long term physical ailment do you have that you wish would just go away?
I have eczema on my ears of all places. The women in the maternal side of my family have all had it. It is annoying and vexing. And nothing will make it go away.
Scuba
(53,475 posts)RebelOne
(30,947 posts)There is no cure for it. The only thing that helps at night is several glasses of wine, and then the noises go away so I can sleep.
yellerpup
(12,253 posts)It took a few months, but I could sleep through the night and after a few months the whistling and vibrations just went away. Doesn't interfere with your wine either.
Rowdyboy
(22,057 posts)His tinnitus is awful but with a fan and the noise machine he sleeps like a baby. I'm used to it now and have a hard time sleeping without it. I can hear "babbling brook" in the background right now....
Summer evening is great for camping fantasies....
RILib
(862 posts)I looked for one, but the ones I saw on amazon had bad reviews. Thanks.
Rowdyboy
(22,057 posts)I don't have a flashlight and its dark in the bedroom!
It was under $20 and has 10 or so different setting. Will either go for one hour at a time or until you cut it off at your discretion. I love and I don't even have tinnitus.
Rowdyboy
(22,057 posts)I found it on Ebay and we both LOVE it! I'm pretty sure it was about $20.
yellerpup
(12,253 posts)Not being able to sleep because of tinnitus, to me, was the worst part. Once that was solved I was able to get better. I hope it works that way for your guy, too! My machine just made a soft 'blur' of all other sounds, but one with a babbling brook that brings on fantasies of camping under the stars sounds cool. Tempering the whole miserable experience with play can only make him recover faster. He must be grateful to have such a resourceful partner.
Rowdyboy
(22,057 posts)change. He's had it constantly since his father made him fire some damn rifle when he was 15. Doctors can't do anything for it and he never complains but the machine really seems to help. We even take it with us when we go out of town.
yellerpup
(12,253 posts)I was told that it might or might not go away. I've come to think that "itis" on the end of anything means "and...we don't have a clue," so it could happen. We traveled with our sound machine when I still needed it. I hope it goes away for your partner the same way it did for me. I get a screech now maybe once every 5 years or so.
av8rdave
(10,573 posts)I have the same issue. Since I travel for a living, I'd rather not haul a white noise machine around.
At home, my SO usually falls asleep with the TV on (low volume). It serves the same purpose. A fan works too.
yellerpup
(12,253 posts)The less you have to carry when traveling, the better. All great suggestions.
DearHeart
(692 posts)My father swears its true...but who really knows.
RebelOne
(30,947 posts)And I only use low-sodium salt. So that is not my problem.
Sekhmets Daughter
(7,515 posts)kurtzapril4
(1,353 posts)Just go away, please!
benld74
(9,904 posts)GET OUT!
Honeycombe8
(37,648 posts)kurtzapril4
(1,353 posts)I wish I could make everybody's illnesses go away!
zanana1
(6,121 posts)I'm living on borrowed time.
graywarrior
(59,440 posts)Ones that knock the crap out of me. Going thru an attack now that's lasted 3 weeks.
LiberalEsto
(22,845 posts)My allergy/asthma season kicks off earlier and earlier every year, with tree pollen wafting in from places south of Maryland. When it starts in January, it's probably cedar pollen, then the maples, birches, oaks, etc. start blooming. I use an inhaler and prescription nasal spray until late April, then I'm fine for the rest of the year.
I hope you feel better.
graywarrior
(59,440 posts)Thought I was gonna die.
LiberalEsto
(22,845 posts)I hope you're feeling better now.
graywarrior
(59,440 posts)Thanks you!
freshwest
(53,661 posts)a la izquierda
(11,795 posts)I am allergic to some -caine medications. I unfortunately only find out after I get them, which is horrifying. I almost died the first time. Needless to same, the dentist is a huge source of anxiety.
Sekhmets Daughter
(7,515 posts)On top of everything else...that's awful.
RILib
(862 posts)trof
(54,256 posts)I know 4 women with A-fib and not one guy.
MrsBrady
(4,187 posts)that had it...I say had it, because he just passed away....
although A-fib didn't get him...but the emphysema did.
distantearlywarning
(4,475 posts)It got so bad a year or so ago that he had to have heart surgery.
He's 89 and has had a pacemaker for about 10 years now. All is well: he lives to fight another day. (Usually with me, about politics!)
bluedigger
(17,086 posts)I (male) was diagnosed at 43 with A fib. Fucked up my life right good, it did.
timdog44
(1,388 posts)My wife has/had it. Occasional bouts, about once a year for ten years. She carried a "pocket pill" (rhythmol) to take when it came on. Then if the a-fib did not go away, she was to not eat or drink anything for 12 hours and go to the hospital, and then be converted. Not a pleasant experience. Then family issues raised it ugly head and the stress of it caused her to have 4 episodes and hospitalizations in a 2 week period. So her cardiologist suggested a procedure called an ablation. Not something to be done lightly, but the alternative was to be on four different cardiac meds. So she had the procedure done, and has been a-fib free now for over 1 1/2 years. Even with the family issues still continuing.
So good luck with it. Don't know exactly your situation, but there is hope. Especially not having to take all the medications to prevent it and the blood thinners that are either expensive or not exactly safe.
I used to envy people who had had an ablation, although I was too chicken to have one. Then I saw a video of the procedure. I'd been envisioning the burnt lines as like the diameter of an electrical wire (not including insulation), but no, those suckers are like a cm wide. I'll stick with meds unless things become intolerable. I take Rythmol every day. And unfortunately the success rate for ablations is like 80% and some people actually die during them.
GoneOffShore
(17,340 posts)And diverticulosis which can cause attacks of diverticulitis.
Neoma
(10,039 posts)trof
(54,256 posts)Periodontal disease.
Have to wear a partial denture to eat.
Bummer.
RebelOne
(30,947 posts)I have battled periodontal disease for years. I have had operations and permanent bridges where I have lost teeth. And it has cost me many thousands of dollars throughout 30 years. I have finally given up. I am facing the prospect of having all my teeth yanked out real soon. I do not want to wear dentures, but I cannot afford implants.
trof
(54,256 posts)I wear a partial upper for molars.
Happily I don't have to wear it for cosmetic reasons, just when I eat.
I have a friend who has had full dentures years and he says he doesn't really notice them any more.
Puts 'em in on arising and takes 'em out at bedtime.
Good luck.
RebelOne
(30,947 posts)If it were not for my bridges that I have to glue in with dental adhesive, I would not be able to eat. Going to have to contact a dentist soon whenever I get up the nerve.
kurtzapril4
(1,353 posts)how glad I was to have my horrible teeth removed. It was a relief. I went for 15 years w/o dental insurance, so there was never any money for regular check-ups. So, if a tooth started hurting, it got pulled. $150 Vs. $900+ to save a tooth. Eventually, I had these teeth that were very, very loose, and it was painful to eat.
My dad passed away, and left us a little bit of money. The first thing I did was visit a dentist, and get dentures. He had to pull a few more teeth, but oh, my god, the difference in my life the dentures made. Eating without pain is a wonderful thing.
RebelOne
(30,947 posts)I was fortunate that I had dental insurance in all my jobs, which paid for all the dental work I had to have done, including gum work, bridges and whatever else I needed. But now I am retired and on Social Security with no dental insurance. Fortunately, I have enough in savings to cover what I may need when I have to get dentures, which is going to be very soon. I am just trying to find the right dentist.
sweetNsassy
(64 posts)dixiegrrrrl
(60,010 posts)But the option of it "going away" may be worse.
Gidney N Cloyd
(19,838 posts)applegrove
(118,677 posts)El Supremo
(20,365 posts)With this:
I know, it looks like an RPG, but it worked!
supernova
(39,345 posts)El Supremo
(20,365 posts)But they did it at the same time as a colonoscopy. DON'T ever do that!
DearHeart
(692 posts)If my backs not killing me, then my foot is. Always in pain and no real relief.
My mother, sister and niece all have eczema. My mother's is kicked off by eating too much wheat, also by perfumes in lotions, shampoos, soaps. She uses Cetaphil, and lotions without lanolin and she uses only ivory soap or dial yellow. Could be the detergent you use to wash your sheets/pillowcases. If you're wearing earrings, you could be allergic to nickel; mom had that problem too. She had to get a special creme from the dermatologist to get it cleared up and then she stays away from the rest as mentioned above.
Has it been diagnosed as eczema? My father had skin cancer on his ear. Don't want to scare you, but wanted to mention, just in case.
Hope something clicks and you get some relief!
LiberalEsto
(22,845 posts)for my herniated disc and sciatica. I used to need at least two spinal cortisone shots a year, but since having the acupuncture 7 years ago, I haven't had a single injection. If the back acts up from overdoing it, an ibuprofen and a few minutes with an ice pack are all I usually need.
DearHeart
(692 posts)I've had cortisone for the foot, but never in the back. I have to use aspirin or Tylenol, I get raspy breathing with Ibuprofen. How many times do you go for the acupuncture? Or was it just one treatment?
My insurance wouldn't pay for physical therapy or shots for my back and now, I'm uninsured.
LiberalEsto
(22,845 posts)The acupuncturist I went to was recommended by our former health insurance company (Aetna) and she gave a discount price to Aetna members at the time. The insurance company didn't cover it. The orthopedic doctor I was seeing encouraged me to go, saying surgery wasn't likely to help.
Our current insurance doesn't cover acupuncture either, but I went to the acupuncturist last fall for a knee problem and she gave me the basic price for those without coverage.
If you'd like to pursue this, check if your state has some kind of accrediting agency for acupuncturists, and also ask around among your friends for recommendations.
Good luck!
DearHeart
(692 posts)Have a Great Weekend!!
RILib
(862 posts)for physical therapy for my back. I love Medicare.
DearHeart
(692 posts)mrmpa
(4,033 posts)went through physical therapy...no help. Finally had surgery, the doctor (podiatrist) snipped the tendon. I have had no problem ever since (10 years). Recovery was all of about 4 days.
My back pain is miserable, only with vicodin can I get it to about a 3 on the pain level.
DearHeart
(692 posts)I wanted the surgery for my foot, the dr did too, but alas, the lovely insurance company said, "No!" Jerks.
Have you tried accupuncture? Seems like your damage is mighty severe, I wish there was someting that would help you out more. All I can do is give you a
mrmpa
(4,033 posts)I've tried acupuncture, but not much help there. I did have an epidural injection, pain was at a level 2 for all f two weeks. However, I had a knee replacement and I talked to the anesthesiologist who was going to perform a spinal. I don't know where he did the injection but my pain was very manageable for 10 weeks. Then back to inflaming levels.
If I have an epidural again, I want them to look at where the anesthesiologist injected, because that's where it should be done again.
agracie
(950 posts)a foot roller. http://www.blackpearlbotanicals.com/wooden_foot_rollers.htm It sure helped me.
Also available on many other sites.
At the same time I started using the foot roller, I started wearing Crocs. After a week or so, the pain lessened considerably. After a couple of weeks, I was almost pain free.
Had the disc problem too. Tried back braces, pain killers, muscle relaxers... but in the end, I had surgery to repair the disc, and am now pain free.
Good luck !
DearHeart
(692 posts)but never got one...then forgot about them. Gonna try these; anything is better than cortisone shots! ugh!
Honeycombe8
(37,648 posts)Dr. said sometimes it goes away, sometimes not. Mine was in one foot...went away and started up in other foot. At least it wasn't in both feet at the same time. Then the pain in teh 2nd foot went away. Thank goodness.
I had been on a walking program, walking almost every day. I think it was that my shoes got worn out AND I wasn't stretching my tendons & calves before walking.
DearHeart
(692 posts)for some odd reason. Still looking for a comfortable shoe that I can stand in for a couple of hours or more. Have yet to find. Was wearing Clarks, but then they changed the sole on the inside of the shoe and now they're not comfortable anymore. Tried on Bjorn, Sofft, and others, but just not comfortable enough.
One day, I will find my shoe! Since Prince Charming didn't show, the damn shoe better!
Honeycombe8
(37,648 posts)I did those exercises for plantar regularly, and that may be why the condition went away. Or maybe I was just lucky.
I wear Clarks, mainly. Recently I got two pairs of Clarks heels. What was I thinking? They were SO cute, and I don't wear heels much these days, and they were comfortable in the store. They KILLED my feet after wearing them all day at work!
I usu. wear those oxfords, loafer types of Clarks that still have some height...maybe 1 1/2". They look okay since I wear pants to the office.
The health of my feet and absence of pain is more important to me than wearing cute shoes. But my loafer Clarks look okay with pants. And I have some bootie types with 2" heel that are stylish and retro.
I'll save the heels for special occasions, I guess. Can't imagine what I was thinking.
Hope your plantar goes away. I don't know how long you've had it, but sometimes it does goes away, esp if you keep the backs of your legs and achilles tendons stretched. I certainly learned the importance of good walking shoes.
El Supremo
(20,365 posts)union_maid
(3,502 posts)There's a new one every year. Eczema, varicose veins, arthritis, achilles tendonitis. My worst one, which is cutaneous t-cell lymphoma, responded to treatment several years ago and hasn't been seen since, even though technically there's not a cure for it, so that's very nice anyway.
yellerpup
(12,253 posts)Very tiring and at times, extremely painful.
femmocrat
(28,394 posts)I was wondering today how it felt to walk without pain. I used to have long strides and walk over a half-mile every morning. I miss that so much.
yellerpup
(12,253 posts)Beginning in my early 20s I spent ten years getting worse and worse, and then it left me. Miraculous! Now that I'm getting older, I'm beginning to get flare ups again. Nothing like (yet) when I needed a wheel chair. I've been getting along fine, but in the past year it's flared up several times. I wish you days and days on end without pain, and with your good stride back, and freedom to do what you want to do.
femmocrat
(28,394 posts)I wish you the same. back
I wonder how you were without it for those years as it is degenerative. You were even in a wheel chair? Wow, that was certainly a miracle. God Bless.
yellerpup
(12,253 posts)I was told rheumatoid arthritis, and I did become somewhat knobby in my wrists and knees with the pain so intense in my feet that I couldn't bear the weight of a sheet on them at night. I woke up one morning shortly before my 23rd birthday thinking I had broken my arm somehow in my sleep and went from doctor to doctor until one of them gave me a shot of steroids (I didn't ask for it, I had no idea what was happening) and that worked for a week or so and then it certainly seemed progressive. It lasted ten years almost to the day and I realized that I wasn't having pain anymore and could walk without penalty of pain. Of course, I changed my entire life in those ten years and I became much happier in a new place with a new husband and new vistas to explore and I feel strongly that figured into the miracle. I spent 30 years living a normal life, and now it's creeping back in. I'm hoping to get lucky again. I hope you get lucky, too!
kwassa
(23,340 posts)and benignly-enlarged prostate.
The only serious one is the ischemia, and I had a heart attack three years ago, though I feel great now. Of course, I felt great before the heart attack, too. I have no risk factors for heart disease, not even family history, so it is a medical mystery.
LiberalEsto
(22,845 posts)I'm sick of being constantly depressed. It's depressing.
I wouldn't mind getting rid of my allergies and multiple chemical sensitivity either. I'm very sensitive to soaps, most shampoos and conditioners, mascara, almost all lipsticks, almost all fragrances, most deodorants, laundry detergent, many cleaning products and especially those horrible air fresheners.
becca da bakkah
(426 posts)Oh wait....that can't be. I'm a girl! OK, I'll see your swollen testicles, and raise you one prolapsed bladder!
I have bad, intense back pains from sciatica, and the usual arthritis. But the daily bouts with ulcer pains are the worse. Half the things that I eat bother me. What's a foodie to do?!
FYI, for those of you bothered by ringing in the ears, try taking bioflavonoid supplements. Look it up online, it's highly recommended, if you prefer a more natural approach. It worked for me.
baldguy
(36,649 posts)Sometimes I'll put too much stress on them and they'll swell up like a balloon so I can't bend or put any weight on my leg without a whole lot of pain. Then in the morning I'll put on my braces & eat ibuprofen like candy for a week until I can walk again.
Loryn
(944 posts)Arthritis, anxiety disorder, PTSD - today had the first of several crowns (is installed the right word?)
We all seem to suffer something don't we?
CrazyOrangeCat
(6,112 posts)Sheesh, at least the Tin Man had his oil can . . .
distantearlywarning
(4,475 posts)Makes it very hard to lose weight even when medicated, and fat is perceived as a moral failing in today's society. I am very tired of my character being partially defined by a medical issue. And it's just a pain in the ass in a variety of other ways as well.
Oh, also IBS, which is mostly under control via diet but still has a tendency to "surprise" me a few times a year, usually at the most inconvenient time and place possible, so I can't ever really stop being paranoid about it.
Loryn
(944 posts)Had mine removed close to 20 years ago. Not all meds work the same. A year ago my dr. left, and her replacement changed my meds.
Long story short, took a year & two specialists to get back to normal. Most of it was spent being hyperthyroid. Let's just say I'm lucky I wasn't incarcerated.
hedgehog
(36,286 posts)Giving Up the Ghost. She describes how medical problems including hypothyroid issues and doses of predinisone took her from being very skinny to very overweight in the course of a year, and how it changed the way people treat her.
NightWatcher
(39,343 posts)But I'm feeling pretty good, considering.
Oh, I've got flat feet too. What a bummer.
CherokeeDem
(3,709 posts)tired of feeling achy and exhausted all the time...
In_The_Wind
(72,300 posts)[img][/img]
CherokeeDem
(3,709 posts)Lyrica gave me energy but also gave me major energy drops...I'd nearly pass out, get so tired that I couldn't function, and I gained forty pounds. I'm still trying to get the weight back off, hard when you can't exercise as much as you'd like.
Have you tried Savilla? My doctor put me on that...way less side effects than Lyrica and was developed for fibro...doesn't work as well in providing energy, but I suppose better than not having support of any kind.
Hang in there...I know exactly how you feel.
In_The_Wind
(72,300 posts)I didn't gain weight on Lyrica. My legs, ankles and feet became very swollen painful.
I lost weight when my doctor stated treating my diabetes. It was under control until I started the Lyrica again. I usually stop in the summer because my fibromyalgia is worst in the winter.
CherokeeDem
(3,709 posts)I forgot that...the swelling was horrible...
My fibro is also worse in the winter...I take a lot of very hot bubble baths...light the candles, burn some incense and make a ritual of it...because the hot water really sooths the muscles.
In_The_Wind
(72,300 posts)I would soak for hours. Back then the arthritis in my hips (bursitis in one) was much worse.
I refuse to take Lyrica, Savella or any of those. I do take Gabapentin.
Nucynta is a time-released narcotic. As it is time released there is no "high" from it.
It has helped my Fibro more than anything I have ever taken,
with the exception of vicodin, etc. - which no one will prescribe. I would like to stop taking it too,
as I am drug tested monthly, which makes me feel like there is a scarlet pill on my chest, but it works.
I have not had any of the side effects, weight gain, or that pesky need to commit suicide, that some of
the SSRI medications can cause. In fact, I can't say I have any side effects at all.
It is expensive, they all are.
Let's hear it for big pharma!
In_The_Wind
(72,300 posts)sounds like an excellent option.
I have a Dr's appointment in a few weeks. Obviously we have quite a bit to discuss.
Thank you!
imo: we are being raped by the big drug companies without the benefit of a reach a round!
Loryn
(944 posts)I think it is a fairly new medication, as not a lot of people seem to have heard of it,
and the pharmacy had to order it for me. It does nothing for my arthritis,
but I have not been down for a week with fibro in a year.
Medicare kicked in for me last November, I was afraid they would not cover it,
but surprisingly did. My supplemental insurance co-payment is currently $45.
I look forward to hearing how your doctor responds.
In_The_Wind
(72,300 posts)The co-pay was high for Lyrica making it a winter drug. My doctor is great.
He isn't going to be thrilled about my swelling.
I thought it would stop once the Lyrica was out of my system.
It didn't. Plus I've been getting weird chest pains that are new for the past few weeks.
triguy46
(6,028 posts)in my left knee. Sometimes can't walk. Waiting for knee replacement.
pink-o
(4,056 posts)I feel kinda guilty, cuz I'm almost 60 and don't feel a whole lot worse off than I did at 30.
With one exception: strength sucking migraines.
I don't get them often enough for consistent treatment--in fact, the few drugs I've tried are even worse than the condition. But when I do get one, it's impossible to function. Stabbing pain, nausea, light blinding me, the whole shebang. I lose about 3 days every 2 months.
Because its my only chronic condition, I'm more focused on it and it just dogs my life!
doesn't help? I have the maximum strength nasal spray, which in conjunction with a double strength Excedrin helps me.
Gidney N Cloyd
(19,838 posts)Had it scoped first time at ~26 and again at ~53. Even on 'good' days it's not right and always feels like one false move an I'm on crutches for a few days again.
timdog44
(1,388 posts)Scoliosis - 65 degree.
Club foot.
Stocking effect of left leg.
Diplomyelia
Tethered cord.
Spina bifida.
Syrinx. (several)
Spinal fusion from T-10 to sacrum and from there to the pelvis.
You have my prayers
timdog44
(1,388 posts)Thanks.
freshwest
(53,661 posts)It would depress me to tell it all.
Take it easy, don't take any grief here at DU.
timdog44
(1,388 posts)There was a thread started some time ago that said "If you could go back and do one year over again, when would it be?" I didn't answer at the time, but it would have had to be when I was in the womb. These are all, according to my surgeons, from neural tube defect occurring during development in the womb. I actually get around fairly well for all it seems. Have had to do a few major back reconstructions, which I always looked at as an adventure. The ole "laugh or you'll cry thing".
And my list does not diminish any one else's problems. Just different. But thanks, and you take care too.
My wife makes me take it easy. And I've learned from you, that the way not to take too much grief here is to not enter the wrong places.
Baitball Blogger
(46,720 posts)Sometimes I wish I had the power to heal.
timdog44
(1,388 posts)let you have them.
CrazyOrangeCat
(6,112 posts). . . but your attitude, and droll sense of humor is an example for the rest of us.
timdog44
(1,388 posts)You have your fair share of problems. Fibromyalgia is not a fun trip. So many unknowns. Good luck to you.
CrazyOrangeCat
(6,112 posts)riderinthestorm
(23,272 posts)Kali
(55,011 posts)patricia92243
(12,597 posts)RebelOne
(30,947 posts)But after a certain age, there is no way to keep that middle age spread from spreading. I really don't want nor can I afford to go to the gym every day.
GoCubsGo
(32,084 posts)Been fighting it since I was six.
Response to applegrove (Original post)
JeffHead This message was self-deleted by its author.
steve2470
(37,457 posts)Arcanetrance
(2,670 posts)LeftInTX
(25,364 posts)I also have something called erythromelalgia. It's in remission. I would not wish it on my enemy. Just awful. I one time called EMS and screamed, "Amputate my feet"!!!
Boomerproud
(7,954 posts)In 1986 when I was 30 years old I had mastoidectomies in both ears due to growths on the mastoid bone and it cost me 80% hearing in my right ear and 65% hearing in my left ear. I wear a hearing aid and if it goes on the fritz I'm SOL. I try not to think about about what my disability has cost me over the years. Weirdly, right before the surgeries I stopped off at a palm reader (just for a lark) and she said "Hmmm. You have a long life line, but it has a huge break in it at the halfway point." I haven't a clue whether she was conning me or if there's really something to that stuff. I'll never know.
Populist_Prole
(5,364 posts)All began with a herniated lower disc a few years ago. I try my best not to aggravate it by being very deliberate in my motions but, but the flare-ups, when they happen, can get nasty. I still have at least 15 years at a manual labor job before I can retire and I hope I can hold out.
fizzgig
(24,146 posts)yeah, i'm busted up in places, my face looks like high school sometimes and my brain can scream along at a million miles an hour with the most self-hateful shit imaginable, but it's all pretty well under control. i'm a lot better off than many others.
applegrove
(118,677 posts)any more chronic illnesses. The time is now.
Apophis
(1,407 posts)I've been stressed about my thesis research for the last several weeks.
murielm99
(30,742 posts)When I was hyperthyroid, I was a mess. Someone else here said they were lucky not to be incarcerated while hyperthyroid. Me too.
They killed my thyroid, and now I am hypo. It took me five years to get a doctor to listen to me about the meds. It took two to lose the weight I gained from all this. Now I am just maintaining, and feeling good most of the time. I do get depressed at times, though.
The whole thing gave me atrial fibrillation. That has improved also, but it does not ever go away completely.
It was horrible, and I couldn't get any doctor to believe me that something was terribly wrong until my second visit to the ER when there was a great doctor there. Afib, intractable insomnia (2 hours sleep a night for a couple of months), incredible irritability, short of breath, very weak. Before it was diagnosed and I was put on meds, I thought I was going to have to go into assisted living.
I had occasional afib before, but this sent me into it uncontrollably. Rythmol and the thyroid-suppressing med Methimazole came to my rescue, although, as you say, this is something there always.
My first endocrinologist was awful. She disappeared with no covering doctor when I was in the initial really need to tune the thyroid meds stage. My family doctor and I were going crazy and finally did it ourselves
I wound up with a great endocrinologist who let me choose the treatment, and I picked Methimazole, even though in the U.S. they tend to kill off the poor innocent thyroid. In Europe and Japan they tend to go with long term Methimazole. A year later, so far, so good, although my antibodies are just as high.
I hope to go into remission at some point, if so, I will likely still have a working thyroid. But I will be thrilled if things stay as they are.
sigmasix
(794 posts)10 years fighting rare intestinal cancer that has destroyed my ability to work, drained my body and- at times- exhausted my will.
We are getting ready for radiation therapy and a new experimetal chemotherapy. I fight every moment to stay here in this life with the ones I love. I can't wait to get a break- hopefully the new chemo will work! My wife and I remain forever optomistic.
RILib
(862 posts)sigmasix
(794 posts)10 years fighting rare intestinal cancer that has destroyed my ability to work, drained my body and- at times- exhausted my will.
We are getting ready for radiation therapy and a new experimetal chemotherapy. I fight every moment to stay here in this life with the ones I love. I can't wait to get a break- hopefully the new chemo will work! My wife and I remain forever optomistic.
LeftofObama
(4,243 posts)I decided a long time ago that I refuse to be an invalid, though. I try to be optimistic and keep thinking positive thoughts and that gets me through most days. I always try to keep two things in mind: There is always going to be someone worse off than me, and no matter what happens, when I feel like I just can't go anymore, I literally sit down and start counting my blessings.
a la izquierda
(11,795 posts)And I'm only 35. There is nothing really wrong with me according to my doctor (my current doctor blows, but I'm moving in two months and will find a better one). Another doc that I went to before moving to my current place said that the fatigue could be from a really terrible case of giardiasis that went untreated for months. This basically stripped me of all nutrients. I caught it in Mexico and was violently I'll for two weeks. Then I could get around, but could not really process food.
On the other hand, it could be an undiagnosed dietary ailment like celiacs. It runs in my family.
Baitball Blogger
(46,720 posts)When there is a floral imbalance in the stomach, probiotics will help to rebalance you. I live by them. If I had known about them twenty years ago they would have changed my life. I wasn't taking in all the nutrients from the foods I was eating. AND it helps to kill all the bad bacteria that will also cause exhaustion.
raccoon
(31,111 posts)Depression, anxiety, ptsd.
libodem
(19,288 posts)Are both fused with a cage in the disc space. I have chronic pain into my left leg and foot, from my back.
I can't tolerant SSRI, type antidepressants any more so I just try to manage the depression.
LeftInTX
(25,364 posts)I get "serotonin syndrome".
libodem
(19,288 posts)To my tummy and intestines. Ew. Not pretty.
Tom Ripley
(4,945 posts)geardaddy
(24,931 posts)fleur-de-lisa
(14,624 posts)the combination makes working a full time job a full time nightmare.
cliffordu
(30,994 posts)'A necklace on me all my life'.
(apologies to Micheal Ondaatje)
CBGLuthier
(12,723 posts)30 plus years ago I liked to stand in front of the PA speakers at Alice Cooper concerts.
RebelOne
(30,947 posts)in front of speakers at any Alice Cooper concerts. I don't know where mine came from, but I have just learned to live with it.
SwissTony
(2,560 posts)I have reduced sensitivity in my feet. In doesn't affect much of my life, but I find it difficult to walk down stairways. I don't get much feedback from my feet so it's easy for me to understep or overstep while going down a stairway. So, I always walk down holding onto the railing - and I look like a klutz. Walking on rough ground is also problematic. This has lead me to developing an "old man" style of walking with head bowed, short steps. Driving is probably going to be a problem in the future - you don't want to hit the accelerator when you want the brake.
But compared to what some people here have listed, I could be a lot worse off.
Good health to all.
RILib
(862 posts)Would it help to drive one foot for the brake one for the accelerator? I have always driven that way since my first car did not have enough room under the steering wheel for a tall person like myself to switch with one foot, my knee would whack the steering wheel. I don't know how people manage to use just one foot, it seems like it would really introduce a reaction time delay.
SwissTony
(2,560 posts)I've always driven manual except for a few hire cars. So, for me it's right for the accelerator and brake, left foot for the clutch. I've been driving for 40+ years so changing might be dangerous. I live in Holland and one thing I'm not going to do is drive on the German Autobahnen. I used to feel comfortable driving at 160 kph. But i wouldn't now.
To tell you the truth, I'm amazed at your approach because you're tall. I'm not short (5' 10" but not tall. Thanks for sharing your insight. I've certainly known people with the same problem, but no-one mentioned it!!!
Thank you.
We're about the same height, different genders apparently.
LanternWaste
(37,748 posts)Cluster Headaches. Wouldn't wish them on anyone...
vanlassie
(5,675 posts)My father used to get them and I can clearly recall the sound of ice cubes in a bowl if water as he would wring out a cloth over and over. Always in the middle of the night. Eventually, they stopped.
sinkingfeeling
(51,457 posts)cbayer
(146,218 posts)It has grossly inhibited my activity and nothing helps.
GoCubsGo
(32,084 posts)It sucks. About 10 years ago, I had it really bad. It went away after I dropped close to 60 lbs. That weight is back, and so was the PF for a while. It comes and goes now, partly because I quit doing step aerobics. I also make sure I have good arch support in my shoes and slippers.
cbayer
(146,218 posts)I have started putting arch supports in my shoes, but I don't see much difference.
I have a theory that it is caused by wearing heels for years with absolutely no arch support. So many people I know have developed it, it sometimes feels like an epidemic.
Glad you get some relief at times.
GoCubsGo
(32,084 posts)I think the lack of arch support in shoes is big cause. For people like me with very high arches, that just compounds the problem. When I first got it, the only way I could walk without pain was to wear Birkenstocks, Haflingers, or any of the other German orthopedic shoes. New Balance also sells insoles with plenty of arch support. They're expensive (around $30), but worth every penny. I always stock up when they're on sale.
cbayer
(146,218 posts)And Birkenstocks might be a good idea.
I'm on a boat and tend to spend a lot of time in socks - no shoes, which is probably a bad idea.
Thanks so much for the advice. I take whatever I can get and try it!
kwassa
(23,340 posts)I have had custom arch supports made, but what really works are Spenco orthotics, which can be found in any store that carries athletic shoes. I put them in all my shoes. In the evening I wear Crocs, and the dense foam of the shoes really helps my feet.
http://www.wayfair.com/Spenco-Orthotic-Arch-Support-431580-L3138-K~ZSP1026.html?refid=GX15917681340-ZSP1026&PiID[]=4497329&gclid=CJGptoe62rUCFQdU4AodgAcAKA
The other thing that helps is: the more I exercise, the less I suffer from it. And, I stand most of the work day on my feet.
Edit to add: I wear New Balance running shoes, but even with these I take out their arch supports and put in the Spencos.
cbayer
(146,218 posts)I get to the benefit.
Will look at Spencos.
I don't know how you stand on your feet all day. I would be in tears.
GoCubsGo
(32,084 posts)They have nice contoured foot beds, and would be a great alternative to socks. For warmer weather, think about some flip-flops with contoured foot beds. I like Island Slippers. They are pricey, but they last forever. I have a pair that I bought in 1992. The webbing on one of them broke last month. I think Tevas and Chacos also have decent arch support. BTW, sometimes you can find some great deals on Birkenstocks at Sierra Trading Post, if you don't mind a limited selection of styles. Get on their e-mail list, and they'll give you extra discounts. They often have other brands of shoes with good arch support, too.
Another thing to try: Get a 1 liter plastic soft drink bottle, fill it with water, and freeze it. (Be sure to leave a little head space so the water doesn't over-expand when it freezes and crack the bottle. When your feet are really hurting, roll them over the bottle. It will help reduce the inflammation and ease the pain a bit.
cbayer
(146,218 posts)make an effort to try some new things.
Someone else had told me about the ice, but I have virtually no freezer space. I can, however, hang my feet over the side of the boat in some pretty cold water, so I might try that.
I really appreciate your taking the time to give me all this information. I get to the point where I complain but don't try anything new and it's time to stop that (again).
silentwarrior
(250 posts)It does my head in even after 18 years of having the condition.
mostlyalurker
(37 posts)Diabetes never lets up. I have lost 40 pounds, watch my diet like an OCD sufferer, exercise regularly and still sometimes have difficulty with control. There can be very little spontaneity in your life if you don't want to go blind, have a heart attack, lose your feet or kidney function.
silentwarrior
(250 posts)the "joys" to look forward to NOT! Plus, one is seen as a burden of it all
to some people. Many diabetics do not receive adequet health care and not
looked after properly. Surely in this day and age with so much advanced knowledge,
diabetics can look forward to much less complications from this condition.
I think the government, well here in UK, will be trying to bump us all off a bit earlier than expected.
We are seen as a drain on society.
TrogL
(32,822 posts)If it's in just the right position, it pinches a nerve, hurts like hell and I can't walk properly for the rest of the day.
Douglas Carpenter
(20,226 posts)If I am not very careful - I can wake up vomiting and there is always a risk aspiration. In my case I usually only experience this when I attempt to lay down and sleep. Acid inhibitors and being careful what I eat in the last four or five hours before sleeping can greatly reduce the risks. But the effects of the illness are not always predictable.
MnFats
(5,991 posts)...but surely it had been at work on my brain for years previous.
sucks pretty bad. meds help a lot but they're not efficient forever.........anybody got good ieas?
Tuesday Afternoon
(56,912 posts)steve2470
(37,457 posts)Had it off and on since age 6. Would be nice to find the "permanent cure".
GoCubsGo
(32,084 posts)They cost me my job, and are making it impossible for me to find another one. Consequently, I have all sorts of stress-related issues, such as weight gain, insomnia, and probably heart disease.
Dyedinthewoolliberal
(15,575 posts)But as for its going away, well my teeth have already left for the most part so............
But my life is still better than ever!
undeterred
(34,658 posts)The toe doesn't really heal unless you stop walking on it. How do you stop walking?
Hayabusa
(2,135 posts)She's had it for over ten years now and it pains me to see her when she's slow to get up or when she tells me that she's having trouble sleeping because of it.
area51
(11,909 posts)These two websites are support for this disease.
http://essentialtremor.org
http://tremoraction.org
progressivejazzredux
(44 posts)It'll eventually kill me, but for now I'm just fine--no pain, no nothing.
applegrove
(118,677 posts)treestar
(82,383 posts)I had bad cramps a lot. And then they did go away! Menopause has its up side.
applegrove
(118,677 posts)treestar
(82,383 posts)taking birth control pills, which drove my Catholic father nuts.
He'd send me articles that said they caused cancer.
ConcernedCanuk
(13,509 posts).
.
.
oh
maybe it don't belong in this thread
could be short term . . .
and it will go away
when I die
progressoid
(49,991 posts)Prostatitis. High blood pressure. Depression. Toe nail fungus.
The psoriasis I can live with.
ChazII
(6,205 posts)My arms, stomach, back and neck are covered with bumps that look like bites. They are actually small tumors that grow down to my nerves.