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Paka

(2,760 posts)
Thu Aug 29, 2013, 03:28 AM Aug 2013

First time to start my own post!

I lurk more than anything, but I feel so comfortable with the DU family, and appreciate that it is here for me. I mostly just keep up with news in general discussion and latest threads, but I'm in need of some hugs. My sister was just diagnosed with Lou Gehrig's disease and it has laid me low. If there are any words of wisdom out there, I could use them.

Thank you so much. Cat

24 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
First time to start my own post! (Original Post) Paka Aug 2013 OP
DU is a great place Turbineguy Aug 2013 #1
Welcome to the Lounge!... Locut0s Aug 2013 #2
So sorry to hear about your sister, Cat. Suich Aug 2013 #3
Sorry to hear that about your sis.... Wounded Bear Aug 2013 #4
Good vibes and hugs to you and your sister. TexasTowelie Aug 2013 #5
hugs ! nt steve2470 Aug 2013 #6
The only words of wisdom I have is:return to the lounge for hugs and laughter. In_The_Wind Aug 2013 #7
This message was self-deleted by its author Paka Aug 2013 #8
Thank you everyone. Paka Aug 2013 #9
TV sells us this image of the perfect American family rurallib Aug 2013 #10
Oh how sad about your sister LiberalEsto Aug 2013 #11
Welcome! Phentex Aug 2013 #12
One of my closest friends has Lou Gehrig's disease. ConcernedCanuk Aug 2013 #13
The Lounge is the best! Aristus Aug 2013 #14
Hi, Cat. Bertha Venation Aug 2013 #15
I'm so sorry, Paka. It's a bad one. Accept all the support you can get. nolabear Aug 2013 #16
So sorry! IdaBriggs Aug 2013 #17
Hugs to you, Paka. Raffi Ella Aug 2013 #18
Welcome! LostOne4Ever Aug 2013 #19
Great Tolkein quote. Paka Aug 2013 #24
I was looking to see if there are any new discoveries about Lou Gehrig's disease/ALS marzipanni Aug 2013 #20
I'm overwhelmed with all this great support. Paka Aug 2013 #21
There are always people here for you if and when you need us. MiddleFingerMom Aug 2013 #22
I am sorry to hear about your sister. You are in my thoughts and prayers. hrmjustin Aug 2013 #23

Locut0s

(6,154 posts)
2. Welcome to the Lounge!...
Thu Aug 29, 2013, 03:44 AM
Aug 2013

Some very good people here and WAY less drama than GD and the other main groups of which I tend to stay out of.

I'm very sorry to hear about your sister, that's rough. Hugs and good vibes.

Wounded Bear

(58,634 posts)
4. Sorry to hear that about your sis....
Thu Aug 29, 2013, 04:40 AM
Aug 2013

But welcome to the Lounge, where the beer is cold and the 's are warm.

Oh, I don't drink alcohol any more, but I love the hugs.

TexasTowelie

(112,085 posts)
5. Good vibes and hugs to you and your sister.
Thu Aug 29, 2013, 04:42 AM
Aug 2013

The best advice I can offer is to live your life one day at a time and enjoy it because you never know what will happen next.

I hope that you keep on posting.

In_The_Wind

(72,300 posts)
7. The only words of wisdom I have is:return to the lounge for hugs and laughter.
Thu Aug 29, 2013, 05:49 AM
Aug 2013

I'm sorry about your sister.

Response to Paka (Original post)

Paka

(2,760 posts)
9. Thank you everyone.
Thu Aug 29, 2013, 07:24 AM
Aug 2013

The hugs are warm and wonderful. I will be back to share better times with all. I'm still slightly in denial but I know that will pass and we will face the future with corrage.

rurallib

(62,406 posts)
10. TV sells us this image of the perfect American family
Thu Aug 29, 2013, 09:52 AM
Aug 2013

truth be known I would guess most families must deal with some pretty tough blows sometime.
Somehow we survive because we reach down and do what is necessary.
Good luck - do what you can - I have never known anyone with ALS but I hear it is a tough ride.
Our best hope for your sister.

Phentex

(16,334 posts)
12. Welcome!
Thu Aug 29, 2013, 10:52 AM
Aug 2013

Sorry for your sister's news. The lounge lizards are good listeners whether you are feeling low or not. Keep us posted.

 

ConcernedCanuk

(13,509 posts)
13. One of my closest friends has Lou Gehrig's disease.
Thu Aug 29, 2013, 11:00 AM
Aug 2013

.
.
.

He's gone through a lot of pain, and many operations over the last ten years or so,

but he's alive and well. He was depressed for awhile, but with his now improving heath, he's a happy man.

Now able to ride his motorcycle (which he loves), - walks a bit different - knees and hips rebuilt,

But he lives life to its fullest now.

Lou Gehrig's disease can be a long road to travel, but one can make it.

Nothing makes one appreciate living more than the threat of losing it.

He's living, not just surviving, and I'm glad for him.

It was a rough road for him, but he made it.

So can your sister.

Best wishes.



CC

ps: lost my only sister due to a car accident when she was only 44 almost 20 years ago

I miss her. I can relate to your concern. Stay strong.

Aristus

(66,310 posts)
14. The Lounge is the best!
Thu Aug 29, 2013, 11:04 AM
Aug 2013

We're all here for each other. I hope you and your sister are well right now. When you need a shoulder, we're here...

Bertha Venation

(21,484 posts)
15. Hi, Cat.
Thu Aug 29, 2013, 11:13 AM
Aug 2013

I'm very sorry to hear about your sister. I can't imagine what you're feeling.

I wish your sister comfort and healing and comfort for you, too.

nolabear

(41,959 posts)
16. I'm so sorry, Paka. It's a bad one. Accept all the support you can get.
Thu Aug 29, 2013, 12:51 PM
Aug 2013

You'll be supporting her, I imagine, and the more you accept the more you can pass on.

Keep us posted.

 

IdaBriggs

(10,559 posts)
17. So sorry!
Thu Aug 29, 2013, 12:58 PM
Aug 2013

I think there are some really good online support groups for specific issues like your sisters (and for the people who love/care about them like yourself).

Not trying to push you away from DU, but sometimes those groups have members who are more up-to-date about the latest innovations, therapies, etc.

It isn't much in the way of wisdom, but other than sympathy and a it is the best I've got.

Best to you both....

LostOne4Ever

(9,288 posts)
19. Welcome!
Thu Aug 29, 2013, 11:24 PM
Aug 2013

Sorry to hear about your sister. The only wisdom I can give is to never lose hope and to treasure your time with her and to treat each day as though it may be your last. Family is precious.

marzipanni

(6,011 posts)
20. I was looking to see if there are any new discoveries about Lou Gehrig's disease/ALS
Fri Aug 30, 2013, 12:21 AM
Aug 2013

and was interested to find that researchers in 2011 found what they think causes it, and that allows them to know what to focus on to find something that can help. There certainly is a great incentive to cure ALS, or improve the condition of those who have it, so I'm sure they're working hard.

I'll keep you and your sister in my thoughts.

Paka

(2,760 posts)
21. I'm overwhelmed with all this great support.
Fri Aug 30, 2013, 02:22 AM
Aug 2013

for budget reasons I live in Chiang Mai, Thailand, so one of my problems right now is being so far away from her as she is in Eugene, Oregon. I'm scheduled for cataract surgery next month and after that I can make arrangements to go be with her. I have so little information about how advanced her symptoms are it's hard to know where to start.

Thank you everyone.

MiddleFingerMom

(25,163 posts)
22. There are always people here for you if and when you need us.
Fri Aug 30, 2013, 02:31 AM
Aug 2013

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Strength and coping vibes going out to you and your sister.
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