Health
Related: About this forumMS Advocates Split With Romney Over Obamacare
People with multiple sclerosis have treasured Ann Romney as an advocate. But her husband's policies are bad news for them.>> But there's a problem: MS advocates say that policies Romney now supports would be detrimental for many MS sufferers, and they are actively opposing these proposals. Which means that Mitt Romney is now at odds with the MS community he and his wife have long supported.
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Romney has pledged to "repeal and replace" the Affordable Care Act, better known as Obamacare. He also would turn Medicaid, the government health care plan for children and the poor, into a block grant, a plan that would ultimately cut millions from the program. And when he promises to replace Obamacare, Romney has offered only a few weak substitutes, such as capping damages in malpractice lawsuits. All of this would have tremendous implications for people with multiple sclerosis.
The MS Society is actively opposing the repeal of Obamacare, which it enthusiastically supported (just as it did with Romneycare in Massachusetts). "There are so many provisions in the health law that are beneficial to people with chronic illness, including MS," Thompson says. "To do a wholesale repeal would be a real setback. MS is a very expensive disease to have, unlike cancer, where you either get cured or pass away." He explains that MS can cost sufferers about $70,000 a year, half of which is attributed to medical costs. That's one reason why the new health care law is so critical to people with MS: The law ends lifetime limits on insurance coverage, which someone with MS can quickly burn through.
The new law also has a host of measures that will help people with chronic illness live better lives. It includes requirements that insurers sufficiently cover habilitation services, which include physical and occupational therapy and other measures that can help slow the progression of chronic diseases and keep people in the workforce and out of government programs. Thompson says that requiring coverage of those services is "not only the right thing to do, but it saves money because we're not letting the disease deteriorate so quickly."
http://www.motherjones.com/politics/2012/08/mitt-ann-romney-multiple-sclerosis
We need to get the word on this out there folks!
Can you say CONFLICT OF INTEREST as I had previously read that Ann Romney was as on their Board of Directors in 2011?
Thanks for your attention to this and please, keep this one going!!!
THANK YOU!!!
CountAllVotes
elleng
(131,063 posts)and lets keep this going.
CountAllVotes
(20,877 posts)I will fight.
I have this crap illness and this makes me feel half-sick to death!!!
What a damn fraud RMOMEY is!!!
elleng
(131,063 posts)CountAllVotes
(20,877 posts)I am one of the "fortunate" ones with this disease. I can still walk, talk, see and type to a point. I'm nothing like I once was but I am still here.
They can seal the box shut when I stop fighting as I'll be long dead by that time!
Thanks for the hug!!
skeewee08
(1,983 posts)CountAllVotes
(20,877 posts)When will the sheeple awaken?
Will it be too late?
I hope to god not!
Mojorabbit
(16,020 posts)I am so proud of the MS society for making this stand.
CountAllVotes
(20,877 posts)Usually the MS Society never says anything about anything from what I've observed over the years.
I too am glad that they have taken a strong position on this!
silvershadow
(10,336 posts)I am on SS disability and Medicare and supplemental. Even with all that, my medical expenses are eating me alive. The average cost of care for a patient on therapy is around 69k I believe, and the average total household income is only 49k. It leaves a huge gap. I rely on family and friends for so much.
CountAllVotes
(20,877 posts)I'm in a similar boat except the household income here is at poverty level. It has been at poverty level for many years so I guess I'm used to it.
No one with MS ever gets much being most people with this crap get DX'd in their prime in life as I was. Suddenly, BOOM, and that is the end of your "career" whatever it may have been.
And to think this fraud RMONEY just wants more for himself and his ilk.
As for Ann Romney, she is his two-bit shill. I feel sorry for anyone with this illness, even her, but to be using her public persona to promote a two-bit fraud like RMONEY is beyond sickening!
I can only say this much, I hope the RMONEY'S lose and lose badly and never come back to any level of "public service". Greed mongers like this (sick or not sick) deserve nothing as in zero and they do nothing to promote the well-being of the public et al.
silvershadow
(10,336 posts)Even with my disability they take and take for all the various things that don't get covered. I hit the donut hole in April, so i've been paying out the butt for months. My supplemental is Medicaid, but I had hit spend-down on it.
I thank God for what I have, but it's not enough, especially with a catstrophic disease like MS. When I went to court I was awarded Medicare parts A, B, and D. My D is Medicaid. I was getting 200 a month in food stamps, but the last raise on SS put me just above the state's cut-off, so they cut me down to 16 a month. not 1600, but $16. The administrative judge that awarded me said something about extra help, which I believe is what the part D is?
I am luck in that I am a gardener, and despite my disease have been able to garden for the last two years, so it helps some. But I just lost weeks due to illness. I have luckily recovered, so I think I am going to be able to plant my fall garden this week.
I too feel for Ann Romney, having this disease. However, she apparently doesn't understand the financial devastation that comes with catastrophic illness. She is lucky enough to be able to pay for treatments. In my case, my work stopped immediately and suddenly, with no warning whatsoever.
CountAllVotes
(20,877 posts)That is sort of how it went for me too. I never was "well" so to speak but I never knew what the problem was until I began to lose my eyesight. Then they figured out what the problem was.
By this time, I was already primary progressive. It never stopped nor went into "remission" whatever that is.
I have constant symptoms but I still go on best I can.
Fighting the fatigue and pain sure gets old.
There are times I wish I'd just 'effin die but I do not.
There is no "help" with this disease. I figured that out pretty fast not long after my DX in the mid 1990s.
My household doesn't qualify for help like food stamps, etc. either.
I go on anyway as I must it seems.
Hang in there best you can and thanks for sharing!
Most people don't have a clue what MS is nor how cruel of an illness it is either. It just plain flat out SUCKS!
As for Ann Rmoney, I wish her the best of luck. She needs it being married to a selfish awhole that should be putting her first before any political endeavor IMO if he truly loves her as much as he claims he does.
silvershadow
(10,336 posts)with you that no one gets it. AT all. No one. They say and do some of the most ridiculous things. I was an EMT for 911 years ago. Even those I worked with are clueless about MS. I don't blame them, even though I'd like to, as I was clueless also, even though I thought I knew a lot. Trying to describe MS to a layman is an exercise in futility. I firmly believe all of us with MS need to be living together...At least then, we could help each other....lol
CountAllVotes
(20,877 posts)I've often said myself that how can a cure be found if they do not know what MS is? There is no answer.
If I don't understand it, how can I expect others to understand it? I can't.
I'll keep you in my thoughts and prayers too!
Great idea you have there -- maybe we should all move into a place some where, at least we might understand one another I would hope!
silvershadow
(10,336 posts)I hope to raise money for a retreat spot that we can develop for MS families. I have thought it through for many years now. Finally in a spot to start making it happen. I don't know about the fundraising, though. But at least get the foundation established, and go from there. I think that the stress of MS is such that I would like to have a place where we can go to get away, to vacation, or to just meditate. But it has taken a zillion years to get to where I'm at, not sure if it will ever happen. But I'm closer now...
Fridays Child
(23,998 posts)postulater
(5,075 posts)silvershadow
(10,336 posts)about Obamacare. She claims she is paying 3 times more now for treatment than before. I just don't see how that is even possible. But maybe. I told her that her assertion was so breathtakingly out there, that she would have to share more of her story with me for me to believe it, but that I was open to sharing. For one thing, I want to know if it's true. I can see nothing but upside, other than the fact that they need to make it single-payer.