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Glamrock

(11,794 posts)
Fri Mar 11, 2022, 11:17 PM Mar 2022

Got some good news today! Equals Glamrock's a piece of shit.

So me n Mrs. Glam went and toured a memory care facility Thursday before last. Place is amazing. One of the best in the state. If not thee best in the state. And there are a few slots open!

So the lady that runs that wing of the facility came by today to evaluate mom to see if she could be accepted. I haven’t slept all week in anticipation. What if they say no? Fuck, what if they say yes? Ya know?

So she hung out with mom and ran some cognitive tests. Then she wanted to speak to me. Oh fuck. Ohfuckohfuckohfuck. I had a minor meltdown in her office when we first met, so she knew who/what she was dealing with. We sat down together and she told me that she could see my fear and anxiety. “Listen, I have to put the numbers together (scientific, not financial), but there was nothing that red flagged your mother as someone we can’t take on or help.”

Speechless. And openly weeping, fucking yet again. God I hate this! So, good news for moms future. Better quality of life, maybe slow down the dementia a tiny bit? Awesome. Seriously. Fucking awesome man. I’m so psyched.

And then she left. And I was completely overwhelmed by feelings of guilt and abandonment and relief that I wouldn’t have to deal anymore. And Hence the title of my post. And that’s where the “dude you’re a piece of shit” guilt and hatred for myself comes from. I realize this is best for her. And I realize that me n the Mrs. aren’t equipped or have the time to give her the attention this place can give her. I know I’m doing the best I can by her. But fuck me man. Emotionally? Not awesome and I’m abandoning her.

I’ll tell you this, I WILL NEVER PUT MY WIFE THROUGH THIS. I know it’s not intentional on my moms part. But knowing what I know going through this? I now understand the bravery and sacrifice that Robin Williams made. And that’s the route I’ll take. This has been heart rendering brutal. There’s light now at the end of the tunnel. But the feelings that come with it are just as fucking brutal.

Again, know it’s the right decision. Thanks for letting me blow off some steam y’all.

All me love,
Glam

44 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Got some good news today! Equals Glamrock's a piece of shit. (Original Post) Glamrock Mar 2022 OP
I hear you Glamrock Skittles Mar 2022 #1
Glam, you ain't shite, man. Take care. n/t MerryHolidays Mar 2022 #2
Thank you! Glamrock Mar 2022 #39
So glad you've found an excellent home for your mom with professional memory specialists. MLAA Mar 2022 #3
Thanks Glamrock Mar 2022 #19
Glam, you're not a pos! SheltieLover Mar 2022 #4
Not sure Glamrock Mar 2022 #20
When you talk with mom about the move, be positive & excited SheltieLover Mar 2022 #35
Thanks Glamrock Mar 2022 #40
Yw! SheltieLover Mar 2022 #41
Wish I had some words of wisdom.. Deuxcents Mar 2022 #5
Thank you! Glamrock Mar 2022 #21
We all must do things that make us search our souls. pwb Mar 2022 #6
Gracias mi amigo! Glamrock Mar 2022 #22
'here was nothing that red flagged your mother as someone we can't take on or help."' elleng Mar 2022 #7
Right? Glamrock Mar 2022 #23
Glam,you are a good person. I_UndergroundPanther Mar 2022 #8
Thanks Panther! Glamrock Mar 2022 #24
Been messing around on du I_UndergroundPanther Mar 2022 #29
Send it again didnt get it I_UndergroundPanther Mar 2022 #30
I have seen some of your distraught posts about the difficulty... 3catwoman3 Mar 2022 #9
That is true Glamrock Mar 2022 #42
This is going to give her the care she needs, and you will be able to spend quality time with her. BoomaofBandM Mar 2022 #10
Thank you! Glamrock Mar 2022 #43
Dude, steam away. Bristlecone Mar 2022 #11
Not sure how my own self flagellation helped Glamrock Mar 2022 #27
What's most important? As long as she's in a safe place where she's cared for well, JudyM Mar 2022 #12
When my mom was dying my parents were in a retirement facility and most applegrove Mar 2022 #13
xoxo voteearlyvoteoften Mar 2022 #14
Oh, I've been a caregiver (co- with my wife) for someone with dementia. PatrickforB Mar 2022 #15
I'm right there with you, Glam. SergeStorms Mar 2022 #16
Yup, me too. BigmanPigman Mar 2022 #25
You are lovely. And strong. mahina Mar 2022 #17
My mom owned a 2 family house where she lived on the first floor and tenant on 2nd. floor. 3Hotdogs Mar 2022 #18
I read final exit I_UndergroundPanther Mar 2022 #31
sending hugggggs. You and your wife are doing the correct thing, the one that is niyad Mar 2022 #26
I told my daughter something a long time ago. ShazzieB Mar 2022 #28
Dude? Good god, man. Glamrock Mar 2022 #32
You are very, very welcome! 🦋⚘🐦💕🎸🌈 🧚‍♀️🎶🌻 ShazzieB Mar 2022 #33
Glam, you are a loving and courageous soul. If I were your Mom I'd give you a hug and a kiss. littlemissmartypants Mar 2022 #34
Glam, we just went thru this at the beginning of Covid. slightlv Mar 2022 #36
it is good news! bonzotex Mar 2022 #37
One more thing... I would really worry about you and your mom if you didn't feel terrible/guilty. 3Hotdogs Mar 2022 #38
Oh Glam, I went through a very similar thing with my mom. lark Mar 2022 #44

MLAA

(17,274 posts)
3. So glad you've found an excellent home for your mom with professional memory specialists.
Fri Mar 11, 2022, 11:28 PM
Mar 2022

You found it for mom and you are a fine son for caring so deeply. ♥️

SheltieLover

(57,073 posts)
4. Glam, you're not a pos!
Fri Mar 11, 2022, 11:32 PM
Mar 2022

Think of how happy your mom will be to make friends & really receive the care she needs.

Not invalidating your feelings, my friend, just telling you how I see it.

So glad they can take your mom!

When will she be moving in?

Glamrock

(11,794 posts)
20. Not sure
Sat Mar 12, 2022, 02:08 AM
Mar 2022

Evaluation was today. She’s calling me Monday to set up an appointment. I’m guessing 3-4 weeks? I’m so excited about the prospect…and feeling guilty at the same time. Hoping that if she’s happy I can put it away.

SheltieLover

(57,073 posts)
35. When you talk with mom about the move, be positive & excited
Sat Mar 12, 2022, 06:10 AM
Mar 2022

She will pick up on it & have a good outlook going into the place.

I know what you mean about the guilt, but she needs to be there & you have found an exceptional care home for her. That's doing the virtually impossible, imo!

So give yourself z pat on the back for finding her the best option.

Deuxcents

(16,169 posts)
5. Wish I had some words of wisdom..
Fri Mar 11, 2022, 11:32 PM
Mar 2022

But I don’t. I do think your emotions are what many of us know all too well. I also think this decision on you n your wife’s part is out of love and selfless knowing you are not able to give your mom what health professionals can. Don’t beat yourself up..you’re a good son with a very hard decision. Be sure to take good care of you and your wife..it’s important for your health, too.

pwb

(11,258 posts)
6. We all must do things that make us search our souls.
Fri Mar 11, 2022, 11:33 PM
Mar 2022

Family, Death, Sickness are all a struggle in life. It only ends with our own death. Trust yourself. You did right. Peace to you Glamrock.

Glamrock

(11,794 posts)
23. Right?
Sat Mar 12, 2022, 02:13 AM
Mar 2022

I fell apart hearing that. She’s not good. I was not sure if she would be too far gone. This poor woman from the facility. After breaking down in her office and then my living room, im sure I’ll always be “that wet guy” to her! LOL!

I_UndergroundPanther

(12,463 posts)
8. Glam,you are a good person.
Fri Mar 11, 2022, 11:41 PM
Mar 2022

You reached out to me when I was thinking about dying and then loneliness threatened to swallow me whole.

You were there..unlike so many people I knew who are too busy to check in and say hi.

I know the issues with your mom are hard as shit. But know this you are an awesome human being. Just talking to you made my heart heal.

And most of all you truly care.

My mom had a slow decline and her little sister took excellent care of her. After a few years I could see the stress on her. We decided together to give my aunt a break after xmas.


My mom temporarily went to a care home for 2 days.

She died there. I think she died there than rather hurt her sister and traumatize her. I think she was aware at some level family was there and she didn't want to go while we were there.

My mom was a kind person and this I think was her choice because she loved us even though she had supra nuclear palsy and dementia.She chose to die when we wouldn't watch her go.
Even to the end she cared.

To be able to help others you need to accept you have limits like everybody on earth does. Love yourself and know somewhere deep inside she knows and can accept your limits and wants you to have a life.

In my heart, I know first hand you are a good person,Glam.

💖

3catwoman3

(23,970 posts)
9. I have seen some of your distraught posts about the difficulty...
Fri Mar 11, 2022, 11:47 PM
Mar 2022

…of caring for your mom. I don’t recall the specifics of how serious or constant her cognitive decline is.

As a mom myself, I’m going to speculate that your mom would not want you shattered and exhausted by trying to care for her. Think about what you just said about wanting to spare your wife. Surely your mom would want to spare you.

Glamrock

(11,794 posts)
42. That is true
Sat Mar 12, 2022, 10:30 AM
Mar 2022

In a rare moment of lucidity, and they are rare, she told me she couldn’t live with us anymore because she’s being a burden.

I know you’re right, it’s just….knowing this is her greatest fear I can’t help but hate myself even if it’s the absolute best decision.

But you’re totally right. Just hard to see that tree through the forrest.

BoomaofBandM

(1,770 posts)
10. This is going to give her the care she needs, and you will be able to spend quality time with her.
Fri Mar 11, 2022, 11:50 PM
Mar 2022

Good luck with all of it.

Bristlecone

(10,125 posts)
11. Dude, steam away.
Sat Mar 12, 2022, 12:06 AM
Mar 2022

This post just made a difference in my day/night. Thank you and super glad things are working out for your family.

Glamrock

(11,794 posts)
27. Not sure how my own self flagellation helped
Sat Mar 12, 2022, 02:26 AM
Mar 2022

But glad it did! And I’m not trying to be ironic, sarcastic, or funny. It’s a rough row to how. Knowing my pressure release helped someone else? That’s beyond a good trade. Obviously, you’re going through something similar. Glad I could help and please feel free to pm me if you need to vent. It’s a hard hard hard thing to deal with. If I’m off base, no harm no foul. But if I’m right? Im here….

JudyM

(29,225 posts)
12. What's most important? As long as she's in a safe place where she's cared for well,
Sat Mar 12, 2022, 12:44 AM
Mar 2022

the time you spend with her can/will be better quality if you guys aren’t under the unrelenting pressure of day to day care. There will still be plenty for you to do for her. It’s a blessing to find a good place that can take on the lions share of caregiving, really.

applegrove

(118,600 posts)
13. When my mom was dying my parents were in a retirement facility and most
Sat Mar 12, 2022, 12:54 AM
Mar 2022

of the advanced care we had to organize. My sister was constantly organizing and coordinating and ordering and getting the apartment assessed for the changing needs of my parents. My mom passed away and we were glad she was able to stay with dad. But a few months later dad moved into a nursing home and all the issues were solved. They had a trick for any eventuality. I should say that we had excellent private care too in both instances. My dad adjusted well and started speaking French to some of the staff (we did not know he could speak french). Point is you can't say your mom would be happier at one place vs. another. Just keep her safe and visit often and that is the best thing you can do.

PatrickforB

(14,570 posts)
15. Oh, I've been a caregiver (co- with my wife) for someone with dementia.
Sat Mar 12, 2022, 01:34 AM
Mar 2022

It's no joke, and really, really hard. It hurts.

And after it gets so bad, you just cannot do it on your own.

Not your fault. Your mom will be OK - better off, in fact, and don't you be feeling bad about yourself over it. Seriously. Dragging yourself over the coals just hurts you.

Besides, you can go visit your mom at least once a week. Make sure she's OK. Read to her. Talk to her. Tell her how you love her.

It really will work out.

SergeStorms

(19,192 posts)
16. I'm right there with you, Glam.
Sat Mar 12, 2022, 01:40 AM
Mar 2022

After my Mom died in Hospice (an absolutely beautiful place with more help than they'd ever need) I decided I wasn't going to put my family through the same thing. My brother and sister would visit her once in awhile, but all the details and decisions were left to me alone. Like you, I decided I wasn't putting the weight of my departure on my daughter's shoulders. I love her far too much for that.

Right then and there I decided to be the master of my own demise and went out to buy a 12 GA. Shotgun. When the time comes I have a standing appointment with Dr. Remington. My choice, my terms. I've told my family of my wishes so they're not shocked when it happens. One shot to the brain pan and I'm history. I prepaid all of my final expenses with enough set aside for one helluva' party afterward.

Great minds think alike, Glam. Nice to see that others have selected the same exit from this mortal coin as myself. Until you've been through it, you don't get to judge our decision to make others' lives easier at the end of our lives.

Let's hope neither of us has to implement these plans anytime soon, right?

BigmanPigman

(51,584 posts)
25. Yup, me too.
Sat Mar 12, 2022, 02:21 AM
Mar 2022

My family's all about quality of life and when my pain gets too much to stand any longer (this is happening sooner than later) I am doing the same thing. My dad was a perfectly healthy, sharp as a tack, 85 year old and he died in his sleep 3 years ago March 29. I am still in shock since he was so healthy and active but the family is glad that this was how he died. He wanted to die that way, I think most of us prefer quick and no pain. So I am glad he got that last wish. "Quality of life" is my family's motto. Your decisions are based on that too. I stand with you. I think more of us understand your decision more than you realize.

3Hotdogs

(12,367 posts)
18. My mom owned a 2 family house where she lived on the first floor and tenant on 2nd. floor.
Sat Mar 12, 2022, 01:52 AM
Mar 2022

The decision to move her to memory care was when the tenant answered his doorbell and found her in the driveway, 4 a.m. on a cold March morning.

She had her house key in her hand and didn't know how to use it to get back into her apartment. She lasted 9 years in memory care before she died. For 9 years, I visited her to make sure she was well treated and I took care of renting out two apartments.

Yes, I also felt like shit at times and at other times, I knew it was for the best -- especially when I would see "Silver Alert" signs with license plate numbers. I also recall our neighbor, I was about 19 years old and he was in his 60's. He was never "right" and things deteriorated. One day, he disappeared. He was found 2 weeks later, face down in the stream about 1/8 mile from our house.

So yes. You will feel good about doing what you know, needs to be done and you will feel like shit from time to time, doing it. It is natural for us. I was an only child so it was all on me.

So, the thing is to get clear on what you can do for her, emotionally and physically during her remaining time. Do as much of that as you can without sacrificing quality of your life and your significant others. The goal is to be able to look back after she is gone and be able to tell yourself that you did the best you could within the parameters of your current life's situation.

YOU ARE NOT REQUIRED TO SACRIFICE YOUR LIFE FOR HER AT THIS TIME. But do for her all that you know is right.



Subtopic. Should the time come if/when you are in such a situation, I hope you will find a less violent way of ending your life. Do you live in a state with assisted suicide? Investigate the book, "Final Exit."

I hope this all helps.


3H






I_UndergroundPanther

(12,463 posts)
31. I read final exit
Sat Mar 12, 2022, 02:39 AM
Mar 2022

If I wind up in that kind of bad quality of life
and my family has a bad quality of life taking care of me situation too.

Mom had supra nuclear palsy. I do not want to live that way when it starts getting bad

niyad

(113,235 posts)
26. sending hugggggs. You and your wife are doing the correct thing, the one that is
Sat Mar 12, 2022, 02:24 AM
Mar 2022

bestfor your mom, for all of you. There is nothing for you to feel guilty about. Having done memory care for years, I can tell you that the kindest, most loving thing one can do is realizing that the person needs more help than you can provide.

And because my experience confirmed my intentions set many years ago, I am with you and Robin.

May you all have healing and peace.

ShazzieB

(16,357 posts)
28. I told my daughter something a long time ago.
Sat Mar 12, 2022, 02:31 AM
Mar 2022

It was this: "If I ever get to where I am unable to care for myself, do not hesitate to put me in a place where I can be well cared for."

I meant it at the time, and I still feel very strongly about it. The last thing I would ever want is for her to put her life on hold and give up things she enjoys to wait on my ass hand and foot. She's an only child, so if such a decision ever has to be made, it will be on her alone (in consultation with her life partner), and I do NOT want her to agonize about it or (gods forbid) think she should feel guilty about it.

I don't know your mother, Glam, so I can't say for sure how she would have felt about this back when she still had the discernment to make an informed decision, but I would certainly hope that she would not want you to struggle indefinitely with trying to provide care that is way beyond your pay grade. You are NOT going to be abandoning her. Finding a top notch place to provide the care she needs is the OPPOSITE of abandonment, so please strike that word from your vocabulary right here and now (she said sternly).

That place you described sounds excellent. Your mom will be in great hands, she will get excellent care, and you will be around to watch over her and intervene on the (remote) chance anything goes awry. That does NOT equal abandonment.

Lastly, although I know it may seem counterintuitive, please know that beating yourself up with guilt is actually a choice, and you can choose not to do it. In my opinion, you have absolutely NOTHING - ZERO - ZIP - ZILCH - NADA to feel guilty about. I am confident that you are going to be doing something that's good for you, good for your wife, and - yes - very good for your mother.



I am sure that this is going to be a very emotional time for you, and that's to be expected. It's a HUGE step, a turning point in your mom's life and yours. Riding out those emotions is no doubt going to be a challenge no matter what, but I think that the more you can manage to give yourself permission to feel good about the positive aspects for everyone involved (INCLUDING your mom) and realize that you do NOT deserve to feel guilty about this, the better off you will be.

Glamrock

(11,794 posts)
32. Dude? Good god, man.
Sat Mar 12, 2022, 02:47 AM
Mar 2022

I’m moved to tears.

Thanks so much! I just can’t do more than that right now.

Thank you!

littlemissmartypants

(22,631 posts)
34. Glam, you are a loving and courageous soul. If I were your Mom I'd give you a hug and a kiss.
Sat Mar 12, 2022, 04:00 AM
Mar 2022

Because I know she's very proud of you. Keep up the good work! You're a role model for us all. ❤

slightlv

(2,786 posts)
36. Glam, we just went thru this at the beginning of Covid.
Sat Mar 12, 2022, 06:19 AM
Mar 2022

As if the whole idea of a new "home" for Mom wasn't hard enough, we suddenly had Covid to deal with and worry about... and because of the home's warrior intent to keep their clients safe, we never got an orientation. But Mom had already been in an Assisted Living Facility, which is how we learned that there are varying types of homes, and Mom was way past the care they could give her in Assisted Living. What made it really hard is Mom could be downright mean and ugly at times. Assisted Living just wasn't able to deal with that and her dementia.

This home is less than what I'd wished for, but it is comfy and homey. It's farther from me than I'd like, but Sis and my daughter take me out to see her regularly. Also, I always make arrangements for Mom to come home to us over holidays and spend an extended time here (had her for 2 weeks at Xmas). It's hard to see her go back, but I know she's where they can take care of her. After I stopped beating myself up for not being able to do it myself, I was able to see the good they were doing with her.

We had an "oh, shit, we have to make changes" moment here before looking for homes. Mom had spent 2 years with us. I fight fibromyalgia and lupus and weight about 100 pounds. Mom's nearly twice as big as I am, and she always kept finding a way down to the floor. I was terrified she was going to end up really hurting herself. Didn't help that, for the life of us, hubby and I couldn't get her back on her feet upright. But reality hit me between the eyes when she looked at my husband and asked quietly who that man was... and I could tell from her eyes she no longer recognized my husband.

It's not the way I'd planned for her "golden years" to end up being, believe me. I had fully intended for her to live here with us, and hubby graciously and lovingly helped me and agreed with whatever I thought was best. Dementia deprived me and Mom of a lot of things I'd hoped we'd be able to do once we both were retired. But, that's just the way life goes, I guess... I'm like you, tho... I'm not going to put my daughter thru this. I'll find some other way to live (or not) when I get to that point. I'm hopeful by then maybe they'll actually have meds or treatment for dementia that will really help. Meantime, I stopped beating myself up over Mom, accepted that there are some things I just cannot change, no matter how good my intentions, and started working on keeping more of my own brain power. With hubby's memory being not so good anymore, I need all of mine I can hang on to!

You done good, Glam... and after a transition period, you'll see that the homes can work absolute wonders with their clients. Homes these days are not necessarily just warehouses any longer. With luck, she'll make new friends and have a good life of her own that even you might not have been able to give her. And doing it on her own will give her a sense of accomplishment that in the days of dementia become few and far between. Blessings to you and your family.

bonzotex

(865 posts)
37. it is good news!
Sat Mar 12, 2022, 08:23 AM
Mar 2022

You are awesome. I've been through this with my Mom. Now, 15 years later with my Sister in a rehab hospital after yet another age and dementia related health crisis. I'm looking for a good memory care place. This is after years of trying to keep her in her home and happy with ever increasing interventions and home care aides. You are not abandoning her. The 24/7 care needed is crushing for most families.

The fact that you are emotionally wrecked by this just shows how much you care. Watching a loved one taken by dementia is fucking awful. The pros in geed memory care homes actually do know how to enhance their daily experiences and keep them safe. They will help keep you sane too.

It's OK to be sad. You are on the right path.

3Hotdogs

(12,367 posts)
38. One more thing... I would really worry about you and your mom if you didn't feel terrible/guilty.
Sat Mar 12, 2022, 08:58 AM
Mar 2022

Think about that.

lark

(23,083 posts)
44. Oh Glam, I went through a very similar thing with my mom.
Sat Mar 12, 2022, 11:02 AM
Mar 2022

I know how hard it is, and the guilt it involves. We had a big double dose, first for putting mom in an Assisted Living place when we couldn't find 24x7 care for her at home and then when we disconnected her from the ventilator 3 years later. That one was the biggie!

Life is not easy for caregivers or family members of the seriously ill, it hurts.

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