Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

Bereavement

ChazII

(6,200 posts) Tue May 17, 2022, 12:45 PM May 2022

International Neurofibromatosis Awareness Day - May 17

Both my son and I had (and I still have NF1) Neurofibromatosis Type 1. This is my second time celebrating or spreading awareness of Neurofibromatosis with out my son. We light the house in the colors for NF. If you don't know about this disorder remember Google is your friend. Or even better visit Children's Tumor Foundation ctf.org

We did have several members here at DU who have this genetic disorder. I am posting this in bereavement manily because I am missing my son today. He passed 3/6/20 from a glioblastoma brain tumor.