Me vs CP and DU (the long story, for those who don't know it)

[IdaBriggs]

143. In your dreams and don't I wish.

The supplement companies are not FDA regulated and this is a HUGE barrier. I have spoken with top people at multiple companies (multiple brands work) and their frustration goes back thirty years. My favorite recent story on the ridiculous challenges goes like this -

An ND associated with one of the well known supplement companies had a two year old diagnosed with HUS (hemolytic uremic syndrome) and things were bad. As her condition deteriorated, there was plenty of time for the ND and the MD at the well known and respected hospital to talk philosophy. Finally, with the little girl beginning to experience total organ failure, the talk was given to the parents about how acceptance of the inevitable needed to be dealt with. The ND made a decision; he began giving his little girl his particular brand of liquid trace minerals and lied when asked what he was doing for fear of being kicked out of the hospital. Within 24 hours her blood work numbers showed improvement and the MD demanded to know what he was doing; the ND continued to deny anything, the little girl had a completely unexpected full recovery and, once she was safe, confessed to his intervention.

The little girl is 15 now. The physician who observed this miracle has NEVER investigated further, but approximately two or three times a year, the ND receives a phone call from a parent who was told to call him BY THE MD with no further information. The ND makes a little care package, goes to the hospital, prays with the family, and then in a private place walks the parent (I was told it always seems to be the dad) through how to administer and keep quiet about what they are doing. The MD is not involved. If he was, he could be sued. The only time the ND hears from a parent is when there is no hope. This has been going on for a dozen years.

Your assumption that logic and a profit motive would automatically insure adequate investigation of my assertions is one I shared SIX AND A HALF YEARS AGO. It is more complicated than that, and I maintain my assertion that it isn't a "big pharma" conspiracy, but more bureaucracy and politics and posturing and pride. Plus, it is COMPLICATED with nutritional issues being impacted by previous generations (the vets document the impact of nutritional issues impacting two generations down from females who experience deprivation during pregnancy) and diet and regions preference issues - the preemies were EASY because they were documented already (and easy is a relative understatement), but then I had to figure out FOUR OTHER WAYS children ended up in a deficiency state, too, (maternal deficiency, absorption issues, malnutrition and exposure to teratogens) and there are probably more, since 13% don't respond.

This stuff should be worth millions. Part of the problem (?) is no one is going to get rich because there are already a dozen plus companies selling the stuff and it looks like all the brands work.

It cost me $20 per child for a three month supply of the stuff that destroyed the "takes two years for a preemie to catch up" MYTH.

The March of Dimes raised millions of dollars to help premature infants. Their top people get paid $500k each, and most of their fundraising supports their "expenses".

Ask me where the money is in that equation. Ask me about their interest level and support of any investigation at local, state and national levels into this intervention.

Ask me. I dare you.