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IdaBriggs

(10,559 posts)
9. Ah. The implication being that you think "I" am a crook.
Sun Sep 8, 2013, 08:36 AM
Sep 2013

You are an anonymous person. My name is the same here as it is on Facebook as it is on LinkedIn as it is in the *many* places you can google me. I have been interviewed by reporters (http://www.growingyourbaby.com/2012/09/18/micronutrients-said-to-help-preemies-may-also-help-children-with-cerebral-palsy/), speak regularly with professional researchers all over the country on the topic (it is WAY too big for one person, thank you very much), explain the protocol/concepts/concerns to health care providers on behalf of parents regularly, and have begged funds from family and friends (after my husband financially cut the Project off because as he put it, "we can't afford to save the world&quot to try to help hundreds of children. I have received no financial compensation in any shape or form to the point of foolishness and you think YOU calling me a crook, oh ignorant one, matters other than making you look like a fool to those who know what the heck is going on?

You believe the fact there is a non-working donate button on our page makes me a crook? Personally, I think it just makes me look disorganized and overworked - the whole page needs a good update/overhaul to reflect what we have learned in the last year, and I have not made the time. (Now THAT is a crime you can lay at my feet with justification - prioritiziationissues; guilty as charged. Sigh. My six year old son is sitting next to me wanting some attention and/or the IPad, and I am telling him "just a few more minutes" while I respond to your slurs. His twin sister is watching television - yes, I am Mommy-of-the-Year. Sigh.)

Do you honestly believe that figuring something out of this magnitude - that neuro issues ranging from hyper spastic and hypotonic symptoms through sensory processing and developmental delays which also affects infant mortality and failure to thrive explained using existing research, can be prevented, and even corrected in a matter of months following an inexpensive, already available protocol with dozens of companies already selling it under different brand names over the freaking counter means the extremely conservative, slow moving, cautious medical community is just going to jump all over this because four out of five times it works?

Dude, that was *me* back in 2009 - "everyone wants to help babies!" Uh, no - there are lots of people very concerned with earning their daily bread, and not so concerned with their "mission" (ask me my opinion on the good folks at "March of Dimes" and how much energy they spend raising funds to pay the people who are raising funds; and the regular jokes about how the lawyers are going to take a hit out on me because they get a cut of those "lifetime cerebral palsy lawsuits" really aren't as funny as you think they are).

People know what they know. The politics involved in the research community is cut throat. I am an outsider. The financial stakes are high - want to know how much I have to raise to get a table at the conferences coming up to *tell* folks about this? I should be at four conferences in October/November, and I don't know how/if that is going to happen. It is $2K per conference - and NO, they don't let you come for free just because you are a non-profit. (They use the vendor room to pay for the conference space.) Then there is my lodging and transportation, plus my time away from work (I work 40 hours a week, and when I am not there, I don't get paid - plus, husband who also works full time job, and did I mention my six year old twins?) - so I can go as a VENDOR WITH NOTHING TO SELL (seriously, ZERO financial interest) and explain how applying the information in the medical textbooks - just like the veterinarians do - is "kind of" a big deal. I have to explain these concepts in a way that makes sense - "nutrition matters" - deal with the politics of the fact that they specialized themselves out of fixing it for FIFTY F*CK*NG YEARS (neurologists think neuro issues are only brain related while gastros only deal with belly issues - who knew what you put in one affects the other?) ---



So, NealK, thank you for the energizing balm of a good rant on a thread that will sink into oblivion. I don't know what "real world" credentials you have, but I could use some help over here moving a few mountains. PM if you want my contact information - it is pretty easy to find - or just play "skeptical keyboard commando" with the insulting slurs. I have work to do.

Oh, and if you have a family history of heart disease, get yourself to a local health food store, and tell them you need some "trace minerals." Buy enough for about four months (take double the adult dosage if you are already having issues or have immediate family with symptoms) and get back to me about whether it helps or you start feeling better. I have no evidence, but it makes logical sense, so someone should probably investigate. Right now I am busy with other things.

Have a good day, and again, thank you for the tension release - arguing on the Internet with people who don't matter in my life is apparently my favorite form of recreation.

Sigh. I am apparently not that bright.

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