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Yonnie3

(18,804 posts)
16. Lots of good advice above.
Wed Apr 18, 2018, 09:04 PM
Apr 2018

Here are some thoughts about my experience. I didn't know what I was doing,

I helped my father through his chemo. I discovered that for food it is important to go with the flow. What tastes good one day may seem nasty the next day. For my father, I tried to plan good nutrition and at first I wrongly pushed my plan on him. He lost a lot of weight and I realized calories in any form were "good" nutrition. I kept a variety of things on hand to prepare small meals and never pushed him to eat anything. We found flavors of Ensure that were palatable and always kept them on hand. The meat and potatoes guy developed a liking for flavored yogurt cups and fruit salads too. We began to look at it as an adventure in discovering what was palatable. On his better days we would go to the store and wander the aisles looking for possibilities.

We made sure his papers (a Will and a letter regarding his cremation and disposition of his ashes) and power of attorney (limited to one person) were in order and then we talked no more of the details. Time was too short to waste on that. Decisions about his material possessions were deferred. My siblings and I assured him not to worry about any of it, that we would take care of it all per his wishes.

I found that there were just too many variables to make a solid plan. I wanted to have everything in place, but it was not possible. My father lived much, much longer than they predicted. In hindsight I see that we became equal partners in this and I certainly wasn't in charge.

I find it difficult to think of and write of those times. It was tough, but we did OK.

Recommendations

0 members have recommended this reply (displayed in chronological order):

Trust your instincts voteearlyvoteoften Apr 2018 #1
Nobody knows what the hell they are doing. Turbineguy Apr 2018 #2
I agree with hospice, my mother passed in December and was first in palliative care blueinredohio Apr 2018 #7
During the last couple of days I was able call them Turbineguy Apr 2018 #14
How could anyone expect you to know what you're doing? Rorey Apr 2018 #3
First, my heart goes out to you. Siwsan Apr 2018 #4
great advice! Long Term memory goes last but im not sure how that works.. samnsara Oct 2018 #24
I'm so sorry Phoenix61 Apr 2018 #5
First, I suggest you find a local cancer support group. They can assist you in whatever way you need sinkingfeeling Apr 2018 #6
This message was self-deleted by its author sinkingfeeling Apr 2018 #8
You have perfectly described what its like to be a caregiver for a seriously ill parent. enough Apr 2018 #9
Thank you all! cynatnite Apr 2018 #10
I believe that Advance Directives are legally binding Rorey Apr 2018 #12
Your sister may not mean harm Rorey Apr 2018 #13
Your state probably has rules about Advance Directives RandomAccess Apr 2018 #18
As far as diet goes.... Rorey Apr 2018 #11
My dad had lung cancer. procon Apr 2018 #15
what a great account RandomAccess Apr 2018 #19
Lots of good advice above. Yonnie3 Apr 2018 #16
When my uncle went into a coma for 4 weeks, I learned a few things Farmer-Rick Apr 2018 #17
You are stronger than you think. alfredo Apr 2018 #20
Make sure you mother knows you love her and will care for her. JayhawkSD Apr 2018 #21
My experience with food when on chemo Jim Lane Apr 2018 #22
(((hugs))) samnsara Oct 2018 #23
Latest Discussions»Support Forums»Cancer Support»I honestly don't know wha...»Reply #16