i feel like shit. how are you?

[mopinko]

wiped out from a couple of days of house cleaning, and too much c-span. trying not to push too much, but it is so hard. started pt this week. get a recommendation tomorrow for just how much, how long, etc. tomorrow.
how do you find the patience to be sick? how do you adjust your expectations, and not beat yourself up for what you cannot do?
it doesn't seem fair, after 15 years as a full time mom, i start to rebuild a life of my own, and bam. i think i have had fibro for a very, very long time, but didn't get really sick until i had west nile in '02. it has been such a fight since then. at least i finally have a dx and some meds that are helping, but for every little bit that gets better, the impatience just grows.
maybe i am just that way. if i don't have something to bitch about, i am just not happy.
how do you do it? or do you?

[REP]

1. How Do I Do It? Don't Have a Choice

I have chronic kidney disease (stage 2 renal failure) and not only does that cause extreme fatigue, it limits how much I can exert myself as even mild exertion can affect my kidney function for the worse. Doing two errands instead of one can mean three days with a very high fever and nearly bedridden; nonetheless I find a way to get the things done that need to get done. Of course, with the CKD, nerve-damaged arm, inflammatory arthritis, etc, "what needs to get done" did get redefined; for example, it is unbelievably painful to vacuum, so I don't need to do it so often. I do laundry on one day and shop for groceries on another; it's not really possible to do both on the same day. Cooking is as simple as possible - a lot of broiled chicken and other things that are basically heat'n'heat (not prepared foods, though - ick).

[mopinko]

2. vacuuming

i just got a roombah. i love it. it does a decent job. it is a lot more robust than i expected, rolling over thresholds, rug edges, lots of stuff. i still have to stop and watch it sometimes. it is just great to have a little servant.

[ProfessorGAC]

3. There Can Be No Surrender

That's what i tell myself everyday. That's the "how to do it". There are no options. Otherwise it's waving the white flag. I won't do that.
The Professor