9/27 Stacey Update. Bad Day Today. (Except Lindsey Lohan's Father Visited Her Today)

OPERATIONMINDCRIME

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Thu Sep-27-07 08:41 PM
Original message

9/27 Stacey Update. Bad Day Today. (Except Lindsey Lohan's Father Visited Her Today)

Edited on Thu Sep-27-07 09:14 PM by OPERATIONMINDCRIME

Hello all. I'm pretty numb right now and pretty scared again. My thoughts are a bit disconnected today and it was really hard keepin up with the two boys tonight, but as of now they're both in bed, fed and content. It's never been so hard to just even feed them dinner, but I literally forced my way through it. It's just hard to pretend everything's ok and engage with them as I would've before all this, when things are just so painful right now. But I'm doing the best I can and overall, they're doing really well (though the older one, especially come bedtime, is realllllly starting to miss her).

Anyway, for the second day in a row things haven't been so great. Her lungs are getting worse every day. There is a lot of fluid outside of her lungs and plenty of fluid, inflammation and pneumonia on the inside. She is starting to have a lot of trouble oxygenating herself and her respirator oxygen is now up to 100%. I think they had to increase the positive pressure as well. They said that they she can't even tolerate being flipped on her side right now, as even just that makes her oxygen saturation drop.

Her liver enzymes are going up as well, and they did an ultrasound of it today. Not sure of the results yet. Her kidney creatinine and buh levels are still going up as well. Nothing at dangerous levels yet, but it's still nerve wracking.

They gave her immunoglobulin last night and keep having to transfuse her with plasma. Today, they also started the anti-viral medication I researched the other day and asked them about a few days ago. Since a few days ago, each day they said they didn't want to give it to her because of the risks, and that it isn't really specifically for adenovirus. There's no way to know if it will even work in the slightest, since all use of it is anecdotal and there's no real clinical studies done on it. Today, out of nowhere, they decided to give it to her. I guess that's where we're at now. It's called ribavirin. She got the inhalation form instead of the IV form, because the former is far less toxic to her system. I hope that doesn't mean it's a lot less effective though, cause right now we don't have almost any options left and I just need something, ANYTHING, to start working.

Her white blood counts came up a lot today actually, to 2.7. I had been excited about that this morning but then all this other stuff was going on. Furthermore, they kind of took away my positive outlook on the blood counts going up and the neutrophils going up. The reason they kind of hit me in the gut with those numbers today is because this whole time, those were the numbers I was looking to see rise. This whole time, I was waiting for her to no longer be neutropenic and have her neutrophils come up. As of this morning, she's no longer neutropenic. But then they tell me that neutrophils are mainly effective against bacterial sources, and that lymphocytes are what she really needs to fight off viruses. Problem is, she has almost ZERO lymphocytes in her blood counts right now and there's nothing they can give her to help that. They could give nupagen for the neutrophil/white blood count, but that don't do squat for the lymphocytes. The virus is keeping her from producing any, yet it seems like those are the important ones she needs. So needless to say, now I'm not sure I can even get excited about her counts going up, cause it seems like they don't matter as much as I thought, if she has no lymphocytes.

So anyway, things ain't going as well as I'd like. She keeps getting worse and her lungs are in really bad shape. It seems like they're doing everything they can but this virus is just still getting worse. I don't know how she could possibly fight this back and hold it at bay, but she's gonna have to figure it out quick. She has to come home. It seems so dark right now but she has to find her way back here. I just wish this damn virus would just go the hell away, but it's being really stubborn. We need a miracle here. It's kind of at that point now. I'm praying for nothing short of a miracle.

Thanks as always for giving me an ear and comfort,

OMC

On edit: Oh shit, I totally forgot. Lindsey Lohan's father visited my wife in the hospital today and prayed for her. I think one of her friends know him. How weird is that? I edited the title too, cause I forgot to add it above.