The Newborn Genetic Screening Bill (DNA Warehouse) Passes

[flashl]

Association of American Physicians and Surgeons, Inc.

Passing the House of Representatives on a voice vote, S. 1858 has been sent to President Bush for signature. The Newborn Genetic Screening bill was passed by the Senate last December. The bill violates the U.S. Constitution and the Nuremberg Code, writes Twila Brase, president of the Citizen’s Council on Health Care (CCHC). “The DNA taken at birth from every citizen is essentially owned by the government, and every citizen becomes a potential subject of government-sponsored genetic research,” she states. “It does not require consent and there are no requirements to inform parents about the warehousing of their child’s DNA for the purpose of genetic research. Already, in Minnesota, the state health department reports that 42,210 children of the 780,000 whose DNA is housed in the Minnesota ‘DNA warehouse’ have been subjected to genetic research without their parents’ knowledge or consent.”

The federal government lacks the Constitutional authority as well as the competence to develop a newborn screening program, states Rep. Ron Paul, M.D. (R-TX). He states that all hospitals will probably scrap their own newborn testing program and adopt the federal model, whatever its flaws, to avoid the loss of federal funding.

“Drafters of the legislation made no effort to ensure that these newborn screening programs do not violate the privacy rights of parents and children,” Dr. Paul noted.

Ms. Brase has called on President Bush to veto the bill.

AAPS

[truedelphi]

1. Could you offer up some details on what exactly that this bill does??

Will there be a record of your DNA on file??

Will the Powers that Be be allowed to use your DNA as though they have a proprietary hold on your body's most intimate cellular information?

Please give some details.

Thanks

[flashl]

3. More details

Described as a "national contingency plan" the justification for the new law S. 1858, known as The Newborn Screening Saves Lives Act of 2007, is that it represents preparation for any sort of "public health emergency."

The bill states that the federal government should "continue to carry out, coordinate, and expand research in newborn screening" and "maintain a central clearinghouse of current information on newborn screening… ensuring that the clearinghouse is available on the Internet and is updated at least quarterly".

Sections of the bill also make it clear that DNA may be used in genetic experiments and tests.

Read the full bill here


One health care expert and prominent critic of DNA screening is Twila Brase, president of the Citizens’ Council on Health Care who has written a detailed analysis (PDF) of the new law in which she warns that it represents the first program of populationwide genetic testing.

Brase states that S.1858 and H.R. 3825, the House version of the bill, will:

• Establish a national list of genetic conditions for which newborns and children are to be tested.

• Establish protocols for the linking and sharing of genetic test results nationwide.

• Build surveillance systems for tracking the health status and health outcomes of individuals diagnosed at birth with a genetic defect or trait.

• Use the newborn screening program as an opportunity for government agencies to identify, list, and study "secondary conditions" of individuals and their families.

• Subject citizens to genetic research without their knowledge or consent.

"Soon, under this bill, the DNA of all citizens will be housed in government genomic biobanks and considered governmental property for government research," Brase writes.

Source

[grasswire]

4. eugenics, just around the corner

The Bush family has long been enamored of eugenics. Google it.

[jody]

2. This is another controversial element of the promise of medical genetics. Designer babies are

already possible in that prenatal diagnosis makes it possible to detect the presence of congenital disorders in the fetus before birth allowing women to abort.

On another track, a nationwide DNA bank will allow identification of close relatives of any DNA sample taking from a crime scene.