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What would you say when staring certain death in the face? Here is what my dad wrote:

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DFW Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Aug-13-08 11:08 PM
Original message
What would you say when staring certain death in the face? Here is what my dad wrote:
My father was one of the last of the "fair-minded" print journalists
in Washington. A colleague of Helen Thomas, of the same generation,
he would have been 86 this year. He never made it that far. As I was
talking to Helen on the phone, I was reminded of my father's last
column. I hope I'll be able to face it as well as he did. He died
at age 78, eighteen days after this appeared on Nov. 9, 2000. I hope
I'll have the guts to face it as well as he did:

BAD NEWS CAN'T NEGATE A WONDERFUL LIFE< FROM WASHINGTON

This is a column I was hoping not to have to write, especially this soon. Readers of this space know that I have been under treatment for pancreatic cancer for about nine months.
The treatment, mostly medication, plus chemotherapy infusions at an oncologist's office, was part of a study program approved by the Food and Drug Administration and involved chemo applications whenever the blood counts were adequate to sustain it.

It was designed for three treatments, one in each of successive weeks, followed by a week of "rest," during which the cells would have a chance to recover.

For me the treatment went in fits and starts. Only once did I complete a three-week cycle. Every six weeks a laboratory radiological office took X-rays to measure what was happening to the cancer, although pancreatic cancer is extremely difficult to read on X-rays.

About 10 days ago I got the bad news from the oncologist. The chemo treatment, which had been interrupted three times for infections and, most recently was accompanied by a substantial swelling of body fluid, had done about all it could to stem the tumor growth and stabilize it.

One other alternative he had held out was to switch to a different chemo protocol, but he determined that, not only was that treatment less effective than the one just halted, but might well have made me sicker.

He said I had put up an amazing fight and he would never have expected me to last as long as I had.

I was fully aware that the odds on stabilizing the cancer - it could never be cured - were tiny, but I had hoped I might have been in the small minority of those who survived.

Ironically, my predecessor in writing politics for the Times, William E. Pearson, died of pancreatic cancer.

In the course of recent treatment my feet had become so swollen they could hardly fit into shoes or slippers, particularly when I was wearing socks; my legs began to look like a linebacker's, as opposed to my normally skinny appearance, and my belly had grown to a point that made me look as if I were pregnant. It was not unlike the famed Demi Moore magazine cover.
Medication I had taken to get rid of some of the fluid was not working.

And that left: Nothing.

In other words, treatment, except for medication to ease various problems - luckily I have been virtually pain-free during the whole procedure - provided no solution, and all that we could do was prepare for the end.

The obvious question was the length of time I had remaining, and the oncologist volunteered, "It could be weeks, it could be months."

If I had my druthers, naturally, I would choose months, but that is not up to me.

We have already had three visits from specialists from The Hospice of Northern Virginia: an overall supervisor, a nurse and a community affairs expert. This organization is a marvel.
It pays the full cost of prescription drugs - when our company insurance policy was subordinated to Medicare B, the drug coverage my wife Nancy and I had enjoyed at 70 percent of cost was eliminated - as well as the rental of a wheelchair. The drugs are delivered to the house.

Signing up for drug coverage for my wife under the AARP schedule would have been too expensive - the highest premium and only a small percentage of drug costs covered.

The Hospice people are on call 24 hours a day, have a small place where patients can stay if their spouses or significant others are exhausted from caring for their loved ones and offer expert medical advice. The swelling in my lower legs and feet, surprisingly, has already gone down with the experimental use of a diuretic drug, generic name aldactone, three times a day, rather than one or two.

The symptom to watch out for is dizziness, and, so far, happily, I have had none.

The inevitability of the situation, however, means Nancy has had to consult with accounting and legal firms to make sure all the necessary papers are up to date. I have to think about getting rid of mountains of clothes - dressing well was a weakness I never overcame - and piles of books and newspaper clippings and letters from VIPs. If that all sounds suspiciously like the angst Frank Augustine described in his throwing out a lifetime of correspondence, it should.

The family has already put in a bid for photographs, from college, from Army service in World War II, from journalistic trips around the world and superb color photographs of us with Presidents Reagan, Bush and Clinton and Sen.-elect Hillary Rodham Clinton.

There are all the drafts of lyrics I wrote for 25 years of Gridiron Club shows, notes from the president, members of Congress and diplomats, virtually every one of which is destined for the round file.

With my continuing columns I remain the "dean" of the New York news media in Washington, as well as the correspondent with the longest stretch of news reporting of any newspaperman in the capital.

That must now come to an end, though not immediately, and, of course, I shall fight to push the envelope as far as I can, with the wonderful support I have received from relatives, friends, colleagues and neighbors. They have held us in their prayers, and we are tremendously grateful.

Hearst columnist Marianne Means and her husband, columnist James Jackson Kilpatrick, gave us an orchid plant about three weeks ago, and, in a small miracle, it is still putting out creamy white buds and flowers long after it should have succumbed.

It could be a sign, but we are realistic enough not to bet the farm on it.

There is a line in the song "A Nightingale Sang in Berkley Square" that insists, "The age of miracles hasn't passed."

Only time sets the parameters. Until the body gives out (for the spirit never will), then I will have to call it a life.

The hour for feeling sorry for myself has passed. I envy those, like the 90-year-old woman profiled by John Golden in the Times recently; like my erstwhile partners on the tennis court and fellow performers at Gridiron rehearsals.

The incoming Gridiron president, Andrew Glass of the Cox Newspapers, wants me to serve as the club treasurer until my physical capabilities tell me, "Enough." Then a successor can be named.

I could complain that fate had dealt me a less-than-optimum hand, but that would serve no purpose and would ignore the many problems of those less fortunate than I.

I'm still here, and I want to write until the keyboard fails to respond to my fingers and my voice can no longer draw information from those to whom I speak on the telephone.

I don't know how near the end is, nor will I spend time worrying about it. It has been a wonderful life, personally and professionally, and the recognition of that from so many whom I love and respect leaves no room for regrets.

So, agree with what I write or not, don't stop reading. Each day has to bring a new miracle with it.
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mikita Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Aug-13-08 11:13 PM
Response to Original message
1. can't let this go without
thanking you for sharing this. What a treasure you still have in the memories of your father.
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proud patriot Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Aug-13-08 11:15 PM
Response to Original message
2. K and R
:)
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NanceGreggs Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Aug-13-08 11:20 PM
Response to Original message
3. So glad it's easy to K&R ...
... even when you're teary eyed and just a little overcome.

Thank you ...
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stevedeshazer Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Aug-13-08 11:24 PM
Response to Original message
4. Recommended, for you and your dad.
It's obvious he was an insightful guy.
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glitch Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Aug-13-08 11:30 PM
Response to Original message
5. Thank you for posting.
My mom died of pancreatic cancer in April at age 77. She could only stand 3.5 chemo treatments before infection got her.

This is a beautiful line:
"Only time sets the parameters. Until the body gives out (for the spirit never will), then I will have to call it a life. "
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Mira Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Aug-13-08 11:30 PM
Response to Original message
6. K&R thank you ! Sharing makes it bigger and revived once again.
I have a 58 yr old brother fighting for his life as I type this, from cancer, half way across the world.
What I read helped me in my own pain right now. It lifted my blanket of pain and let it some acceptance.
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loudsue Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 09:04 AM
Response to Reply #6
15. Mira, I'm so sorry about your brother.
I'm very close to my brother, and I know if he were in that situation, it would be unbearably painful to me, too. I'm sending you a ((((((BIG HUG)))))), and prayers for you and your family.

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DFW Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 09:40 AM
Response to Reply #15
16. My wife's brother has terminal brain cancer, too
She's holding up OK, sorta, kinda. Her mom less so. It's never easy.

"You never know what you've got till it's gone."
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mike_c Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Aug-13-08 11:37 PM
Response to Original message
7. tremendously inspiring-- that reminded me of an obituary...
...a colleague of mine wrote for himself before he died of brain cancer. Indomitable even at the brink of death. Thank you for sharing it.
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babylonsister Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Aug-13-08 11:56 PM
Response to Original message
8. Wow. My uncle lived with pancreatic cancer for about two years.
He, as a poor vet, went to the VA hospital and never got any kind of service that I'm aware of; the local emergency rooms worked better than the VA for him.
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emilyg Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 01:26 AM
Response to Original message
9. Thank you.
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EFerrari Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 02:57 AM
Response to Original message
10. What an amazing human being.
You're lucky, DFW. Thanks for sharing that with us.
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formercia Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 06:27 AM
Response to Original message
11. Best wishes
Miracles do happen.

On the positive side, many don't get the chance to tie up the loose ends.
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SpiralHawk Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 08:03 AM
Response to Original message
12. Thank you, DFW
For sharing with us the grace your dad emanates...
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madokie Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 08:10 AM
Response to Original message
13. Peace
:grouphug:
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DFW Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 08:21 AM
Response to Original message
14. Thanks for the kind words, everyone.
There have been plenty on the Washington scene who have asked me,
with all the contacts I had via my father, why I didn't follow him
into journalism myself. That last column of his should explain it.
He was such a class act. How was I supposed to fill shoes like that?
I tagged along when and where I could, got to meet and hang out with
lots of people most mortals never get to meet, but to put words
together like he did, to keep fair-minded in the face of overwhelming
urges not to (he was praised in the Congressional Record by members
of Congress from both right and left--in the 60s he had two Senate
friends named Bob, one was Kennedy, one was Dole), he was very special.

You can tell he loved what he did. He never once pushed any of his children
to follow him, and I was the only one who even toyed with the notion. But
even though I didn't take his path, he remains an inspiration. I hope I
inherited his ability to face the end when it is time. I doubt it.
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Silver Gaia Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 01:42 PM
Response to Original message
17. Thank you for posting this. My dad passed away one year ago today
from complications of lung cancer. It helped to read this.
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givemebackmycountry Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 05:56 PM
Response to Original message
18. I've always held in high regard, people who can move me with their words.
Thanks DFW -

I'll have that one bookmarked until they shut us down, and lead us away.

A wonderful piece.
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DemoTex Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 06:13 PM
Response to Original message
19. Your dad's words make me realize how lucky I am: today is my dad's 88th b'day.
Thanks for posting your dad's courageous piece. My dad (a retired professor of entomology at the U. of Ga.) is a five year survivor of esophageal cancer (had an esophogectomy in 2003), so we have had a close call. But he is as strong as a horse now (and as stubborn as a mule!).
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roguevalley Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 06:17 PM
Response to Original message
20. for all who are suffering or who have lost someone, for the OP, I
hug you with all the love I can manage. My father and mother, my heroes and friends and companions passed ten months apart. There are no words. But your father's words, they will more than do.

RV, hugging you tight.

RIP, Alan and Dorothy, my friends, my heroes.
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Individualist Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 06:22 PM
Response to Original message
21. I'm saying "What a trip this has been"
Edited on Thu Aug-14-08 06:39 PM by notsodumbhillbilly
:)

From Thanatopsis:

"So live, that when thy summons comes to join
The innumerable caravan which moves
To that mysterious realm where each shall take
His chamber in the silent halls of death,
Thou go not, like the quarry-slave at night,
Scourged by his dungeon; but, sustain'd and soothed
By an unfaltering trust, approach thy grave,
Like one who wraps the drapery of his couch
About him, and lies down to pleasant dreams."
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Straight Shooter Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 06:35 PM
Response to Original message
22. Life is measured not in its length, but in its breadth.
At 78, your father had perhaps not what would be called a long life, but judging from his writing, the breadth of his life far exceeded many who live decades longer.

Thank you for sharing.
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DFW Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 10:45 PM
Response to Reply #22
28. When the diagnosis came in, he turned to my mom and said:
"So much for clean living."

Until this, he was loved by many, respected by all, and had the time of his life.
He knew he had "done good," and he knew he had a life behind him that had brought
him inner satisfaction far beyond that which most mortals even get a glimpse of,
and universal recognition few ever get to enjoy.

There are very few people whom I would believe when saying they had a fabulous life,
so he had no complaints. When we wrote it, he meant it. I know I'd need a whole lot
more time, maybe an eternity, to say the same thing. Like I said, very big shoes to
fill.
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Straight Shooter Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Aug-15-08 03:50 PM
Response to Reply #28
36. You're a lucky person, that your father was your finest role model.
No regrets. This is what we all want as we approach death, to have no regrets. It sounds like your father came as close as anyone could to that state of mind and heart.

He will always be with you. I don't know why I say that. It just strikes me as being so.
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Uncle Joe Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 06:47 PM
Response to Original message
23. Thanks for sharing, DFW.
Kicked and recommended.:thumbsup:
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Libby2 Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 06:50 PM
Response to Original message
24. That was wonderful.
Thank you for sharing it with us. :grouphug:
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Imalittleteapot Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 07:36 PM
Response to Original message
25. xoxoxo
What a wonderful Dad. He assured everyone that he was at peace with the inevitable.

Thanks for sharing.
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Coexist Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 07:44 PM
Response to Original message
26. .
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whathappened Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 09:03 PM
Response to Original message
27. cancer
i set and viseted with my sister for 3 weeks after they found tthe pancreatic cancer , she lived that 3 weeks to the fullest , died at the age of 60 , so i no where u are coming from , it is a bad cancer , she filled so full of fluids it finally drowned her
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Raster Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 10:45 PM
Response to Original message
29. What a wonderful man your father was....thank you for sharing.
And thank you for your Helen Thomas updates. They are most appreciated.
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DFW Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 10:55 PM
Response to Reply #29
31. Helen is a good friend, and someone important to a lot of people here on DU
My pleasure to report the latest, especially if it's good news.

Last year she practically exhausted herself filming a documentary about her
that one of Bobby Kennedy's daughters was making. This will finally be airing
starting next Monday at 9 PM EDT on HBO.

Helen was to be released today to go home, but she has practically lost all
use of her legs from being laid up for 3 months. She said she will need some
rigorous and painful physical therapy before she can return to the office and
her daily routine, but she is determined to do so.
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w8liftinglady Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 10:49 PM
Response to Original message
30. My dad is dying from pancreatic and liver cancer.reading your dad's column helped me.
I'm sending it to him.your dad's mind worked a lot like my dad's.
Bless you for taking the time to print this.
Peace.
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DFW Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 10:58 PM
Response to Reply #30
32. Without sounding pessimistic
Your dad has an uphill fight on his hands, and that's the best case scenario.
If my dad's words can provide any inspiration at all on how to cope, please
feel free to pass them on. Mine is no longer here to say so, but I know he'd
be honored.
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w8liftinglady Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 11:03 PM
Response to Reply #32
34. I give my dad 2 months.Sad.I'm still trying to get used to the fact he's dying
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DFW Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Aug-14-08 11:22 PM
Response to Reply #34
35. Take it from one who was there: you NEVER get used to it.
Late in November, 2000, my mom called me from the States and said that I should
get my ass over there if I wanted a last visit. I flew in on a Saturday, having
made reservations to fly back to Europe the next Tuesday. I called in from Dulles
Airport, and my dad answered the phone, which I found encouraging. When I got to
the house and saw him, his first question was, "well, do I look better or worse
than you expected?" I expected him to look pretty bad, and he did, so I said neither
nor. But he was a mess. He was pretty comfortable Sunday, but he complained of
shortness of breath Monday morning, which had to be a fluid buildup in his lungs.
We called the Hospice people, who came out right away, but he just kept fading
until he just sat up in his bed, stared straight ahead, and started to lose color.
I held his left hand, my mom held his right hand, we both told him it was OK, we
would take it from here, and he just slowly stopped breathing.

The woman from the Hospice said she was amazed the he had held on for so long, and
it wouldn't have surprised her to know that he had summoned some reserve of super-
human will to live until I got there. We'll never know.

That trip to Washington wasn't the hardest trip I ever made.

The trip back from Washington was.
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