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demtenjeep

(31,997 posts)
Sun Mar 25, 2012, 12:26 AM Mar 2012

I HATE Crohns most of the time I have the stop the car where ever is possible to use the RR

but this week, I have had pencil thin stools that barely come out if any at all. Lots of pain in the right side from rib cage to hips. Feel like I need to vomit quite often. Get really hungry but then get full super fast

Had my recent round of remicade just last week. Think I have a blockage somewhere. Guess I will be calling the doc on Monday



have I mentioned Crohs SUCKS

12 replies = new reply since forum marked as read
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I HATE Crohns most of the time I have the stop the car where ever is possible to use the RR (Original Post) demtenjeep Mar 2012 OP
You may need to go to the ER .. Monday is a long way off. auntAgonist Mar 2012 #1
Are you feeling better today? auntAgonist Mar 2012 #2
That does sound like partial blockage Lindakimy Mar 2012 #3
yea, it was a blockage and I ended up in the hospital demtenjeep Mar 2012 #4
How are you doing? Lindakimy Apr 2012 #8
still a little rough. Every day...heck hour...is up and or down demtenjeep Apr 2012 #9
I understand that Remicade infusions are terrific for management of crohn's. FarPoint May 2012 #12
Have you ever heard of Dr. Stephen Hanauer at the University of Chicago? Peregrine Took Mar 2012 #5
no tell me more demtenjeep Mar 2012 #6
Here is a little bio on his work. Peregrine Took Apr 2012 #7
Please try coconut oil... jxnmsdemguy65 May 2012 #10
to cook with? to drink? demtenjeep May 2012 #11

auntAgonist

(17,252 posts)
1. You may need to go to the ER .. Monday is a long way off.
Sun Mar 25, 2012, 02:25 AM
Mar 2012

I hope you feel better very soon!

Don't wait it out if you're ill.

please.

aA
kesha

Lindakimy

(19 posts)
3. That does sound like partial blockage
Mon Mar 26, 2012, 09:13 PM
Mar 2012

I have one probably caused by scar tissue from a surgery years ago. It's about 3 inches long and is right at the connection between small and large intestine. I didn't know it was there until 2 years ago when it put me in the hospital on Christmas. (There's a clue there.)

Once I saw it on the scope and realized that it is like a bottleneck but not a roadblock I realized that I can be careful with it and avoid misery and more hospitalization. That's really important since I no longer have insurance. Since then I eat smaller meals and I have become a little compulsive about chewing. I've known for a long time - since I was diagnosed back in 1980 - that fiber is not my friend. I love veggies but I do have to watch it so that I don't end up paying a price. I suggest that at least temporarily you try a lower carbohydrate diet, adding as many good vegetables as your system will allow gradually. The carbohydrates - especially veggies, fruit and whole grains (all the good stuff!) can be hard on Crohn's even though they are doubtless very good foods. I find that when I concentrate on lower fiber nutrients like protein and cooked vegetables my system calms down and works better. Oddly, potatoes are a real trigger food for me and will cause cramping and problems.

You can even put yourself on a kind of resting diet until things calm down and your system clears out a bit. Broth and such can be nutritious and you should supplement with vitamins (in my opinion but I'm no doctor). because you won't be taking in as many goodies from what you eat. You could even try some of the nutritional supplement liquids if the sugar in there doesn't cause you problems until your system clears out and rests a bit.

Hope you feel better soon! I sure know how bad it can be.

 

demtenjeep

(31,997 posts)
4. yea, it was a blockage and I ended up in the hospital
Thu Mar 29, 2012, 06:33 PM
Mar 2012

so thank you all, you were right. I shouldn't have waited so long to go to the Doc

Lindakimy

(19 posts)
8. How are you doing?
Mon Apr 9, 2012, 08:04 PM
Apr 2012

I hope you are feeling better and that the docs are doing good things for you.

A blockage is really painful - NOT fun. It takes a little while to get over and I hope you are making progress and doing well. Let's hear from you.

 

demtenjeep

(31,997 posts)
9. still a little rough. Every day...heck hour...is up and or down
Mon Apr 9, 2012, 11:27 PM
Apr 2012

but I think we are getting back to "normal" Still have a lot of pain and get so so tired by 3 pm

FarPoint

(12,474 posts)
12. I understand that Remicade infusions are terrific for management of crohn's.
Sat May 26, 2012, 05:04 PM
May 2012

A friend of mine has been on this as a home infusion. She gets it every eight weeks. A nurse from Walgreen's comes to her home and starts and IV then gives the drug. She does not have the anxiety or worry about finding a restroom quickly due to unpredictable urges due to the Remicade infusions. She also takes pills for this something like Lialda...not sure of the spelling.

Peregrine Took

(7,417 posts)
5. Have you ever heard of Dr. Stephen Hanauer at the University of Chicago?
Fri Mar 30, 2012, 10:07 PM
Mar 2012

He is an expert in this field (Dept Head, Gastroenterology)

He saved both my husband and I from advanced ulcerative colitis.

jxnmsdemguy65

(548 posts)
10. Please try coconut oil...
Thu May 3, 2012, 01:00 PM
May 2012

You will find ample testimonies on the Internet of folks getting a lot of relief from this with coconut oil.

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