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Only about the feeding tube, my mother could meet her first grand grand Ci

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elf Donating Member (805 posts) Send PM | Profile | Ignore Sat Mar-26-05 03:29 AM
Original message
Only about the feeding tube, my mother could meet her first grand grand Ci
I'm ambivalent, I took care for my mother three years with a feeding tube (In Germany)

NO CHEESE LIKE UGLY STUFF, In Germany I could choose between taste, I took chocolate because she loved it so much.
We took her home and I ordered a computer device to get the food slowly and controlled into her stomach. Three time a day and after every food (500ml) we gave her SLOWLY 500ml Chamomile tea. After that, we cleaned her tube and she had digestion rest until the next meal!
My mother suffered from Parkinson's and I saved her life, by flying her out of her little North Sea Island to the main land on

September 11th!!

That was the day, I arrived at this small little Island in Germany and behind me the towers where burning!!!!!

I didn't know, what to do first.............

I decided to charter a little plane to get my mother to the mainland and get her a feeding tube!!!!...............

Very long story, a judge was needed to check if she can swallow or not..............

again.....I didn't know, which catastrophe was more bad, my mother ore my home country burning.............


She died in her home where she was born, surrounded by all she was used to be all her life 3 years later on 4th of July(I always say, she went to heaven with the biggest firework of the world)

Another little note: While she was getting less conscious, she met finally her first grand-grand child and we all thought, she might have gotten a "push " because she said: "Aren't all these little ones beautiful?" Before that she didn't speak for weeks!!!

People, just read this...........there is so much more


BUT I hope this breaks the Bush's necks!!!!

I'm not neutral, I suffer with Terry, BUT what happens right now shows the hypocrisy of this entire system

Thanks for reading, I don't know where else to go
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nadinbrzezinski Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Mar-26-05 03:46 AM
Response to Original message
1. hugs
this is why this should have stayed at the family level from the git go.
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elf Donating Member (805 posts) Send PM | Profile | Ignore Sat Mar-26-05 03:53 AM
Response to Reply #1
2. thank you for reading my mail
I hesitated for a long time, to write down, what I feel about this!!!!

I wish, that this hypocrisy will have and end soon.

This should break the Bush's necks!!!
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nadinbrzezinski Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Mar-26-05 03:55 AM
Response to Reply #2
3. Oh it is having an effect
the law of unintended consequences is playing its role here

Personally as a trained medic, I know why your mother needed the feeding tube and it is a whole world of difference from terri and may your mother rest in peace, and may terri soon rest in peace... as an American it is horrific to see Congress get involved...

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elf Donating Member (805 posts) Send PM | Profile | Ignore Sat Mar-26-05 04:22 AM
Response to Reply #3
4. Exactly, I'm with you
IN THIS CASE...

My ambivalent feelings are only coming from my experience with my mother.
It's a very hard time for me to imagine her state of dehydration, because I saw my mother in the same stage of dehydration when I arrived in Germany at Sept.11th.

The next day I had against all obstacles a plane to get her on a stretcher to the mainland.
My mother went into eternity, when her time was come, but NOT by dehydration or starving!!!

The reason I'm very much with you is,, the Congress should not at all being involved with this, and I think this is a very dangerous situation for the rights which are clearly written down in the CONSTITUTION.


























Money reigns the world , or not?
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Floogeldy Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Mar-26-05 04:37 AM
Response to Original message
5. I'm very glad to hear that you were there for your mother
You and your mother will both be blessed.
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elf Donating Member (805 posts) Send PM | Profile | Ignore Sat Mar-26-05 05:15 AM
Response to Reply #5
7. we needed patience and trust,
trust to each of us in the family and to decide, what is BEST FOR HER.
She did not react for weeks!!!!
But when something special happened, like: my daughter, her grand child came from Seattle to this little island in Germany, she "woke up" and said to her nurse: that's Anna, Elfi's child" and had this nice smile and was for the next time so quite and smiling.


We where just stunned, that she was still able to recognize and say something.

In all times between she was less than a newborn baby.
BUT from time to time, she surprised us with reactions, it happened less when times went by, but her DIGNITY was always taken care of!!!!!
She left us in a very peaceful way, but she could do this in that home, where she was born, surrounded by her family!

I know, it's not possible for most of people.

But our parents need all the care, they gave to us!

For Terry: She needs all the love and care, but not a death ordered by society!!!
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mirandaod Donating Member (437 posts) Send PM | Profile | Ignore Sat Mar-26-05 05:08 AM
Response to Original message
6. Thanks for sharing about your mother.
We also used a feeding tube for our Dad, to give the therapists time to work with him. We wanted to give him every chance. But sadly, he couldn't learn to swallow again. He really missed eating. One day he asked if he couldn't just have a HALF a cookie. He couldn't understand why he couldn't eat. It broke my heart.
Mercifully, he passed away a few weeks later. The feeding tube was never removed.
Blessings to you and your family. You took wonderful care of your mother.
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izzie Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Mar-26-05 05:17 AM
Response to Original message
8. I pity Terri's whole family and think I understand-----
All of it rings true to things that happen in my family and in yours. The parents are to be felt sorry for to have let people use them or them doing it.
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elf Donating Member (805 posts) Send PM | Profile | Ignore Sat Mar-26-05 05:37 AM
Response to Reply #8
9. Thanks for your kind replay
It's late now on the East coast(5.34AM) much too late to discuss any more

Good night to all of you and thanks for listen!!!!!
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Hekate Donating Member (1000+ posts) Send PM | Profile | Ignore Sat Mar-26-05 06:01 AM
Response to Original message
10. Thanks for sharing; you were good to your mother when she needed you
Every case is different, and it should be handled at the family level with a bit of oversight from experts in medical ethics. The slow death of a loved one is hard enough without heavy-handed interference from ideologues and fanatics.

I don't question the sincerity of the people praying in front of the hospice -- they should just mind their own business and pray in church. I don't question the sincerity of Terri's parents -- I feel compassion for them, that they have not been able to understand that she will never improve in this lifetime and it is time to let her go. As for Terri's husband, I don't know where he gets the courage to go on in the face of all of this uproar and hatred. If I were he, I might have given over the responsibility to the Schindlers long ago, just so as not to have to deal with them again. Terri's husband Michael apparently has cared for her very, very well.

But I do believe the Bushites are behaving with the utmost political cynicism by manipulating the Talibaptists and whipping them into a dangerous frenzy. I pray that this time they will finally over-reach themselves so greatly that the majority of Americans will finally see them for what they are. :scared:

I'm fortunate in that my parents both wrote advance directives decades ago, so I'm familiar with the idea already. But of course all my friends' parents are also aging, becoming frail, dying... and nothing about major life events is ever black and white. I have a friend whose mother had a series of small strokes starting in her 50s and became mentally incapacitated, so that my friend ended up being her mom's guardian and caregiver. In the final year of her life, she did have a feeding tube because she could no longer swallow enough, but my friend was certain her mom still got some enjoyment out of her life until nearly the end.

At this point I know quite a few people who are involved with their parents' care to a greater or lesser degree, and no matter how difficult, it's always about love and the duty a child owes its parents. The Congress and President could help out a lot by ensuring that we all have the same medical plan that they enjoy (and that we are paying for) -- that would help everyone a whole lot. Other than that, the federal government should stay the hell out of our most intimate decisions.

Hekate
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