Reply #6: It must be very frightening..and daunting to have to do all the research on your own.. [View All]

[SoCalDem]

:hug:

It was not cancer we dealt with but all the years of our son's treatment, always involved "experimental" surgeries with 1-5 odds most of the time.. Every time, we beat ourselves up over "what if we make things worse"? or "What will we say to him when he's older and asks us why we tormented him so much?" or "why didn;t we try X ot Y"?

Truth is..you just never really know, and the unchosen choice will always haunt you, no matter which way you go..

In the end we are all just buying time...and we never know how much time or what quality the time will be, or even if the cost is too high or when to stop..

:cry:

I am so sorry you have to be having this dilemma, but just keep asking the questions and trying all you can..No matter what happens youwill at least know you did all you could..