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hyphenate Donating Member (1000+ posts) Send PM | Profile | Ignore Thu Sep-24-09 11:36 PM
Original message
A question to all
I've been getting rather ticked off lately about something that has always been an issue for me: whether or not some medical knowledge needs to be part of a patient's stake in his/her own health and welfare.

For example: I have always taken an active role in my own health. Whether that means researching conditions, medications, diseases or clinical trials, etc., shouldn't matter--simply being informed about things means you are not just being a passive object in the doctor's exam room, and are a partner in looking after yourself.

I have been told off by two people over the course of the past month on this viewpoint. One of my therapists said I shouldn't be second-guessing the doctor because they went to medical school, and I didn't. So their knowledge on medical matters is that much greater than my own, and I need to listen to the docs. The other is my SIL, someone I love, but don't particularly like. She has spent the past four years fighting rectal cancer, and has had two sessions of chemo, and one of radiation, but the cancer is still there, and is, for the moment, inoperable.

The problem with SIL is my eternal frustration that she thinks she knows more than I do about my own health! For instance, a standard argument with her is that I am taking too many pills. And I try to reply to her that she doesn't know the fuck what she is talking about. My doctors and I have discussed what medications I take, and I am well informed exactly what I take, why, and how much. Another argument is that I "need to exercise more" and I need to eat a diabetic diet. Well, SIL doesn't understand that exercising isn't an issue as far as her considering me a lazy good for nothing sloth, but as anyone with CFIDS, Fibro or any one of a dozen other illnesses understands, there is only so much energy and stamina I have in a day, and I get so tired and fatigued that it sometimes just isn't worth it. In addition, when I am out, I have absolutely no balance anymore, and need a cane. And while I do try to walk as much as possible, there are just times when I want to fall and stay down, just to keep from walking any further.

SIL also doesn't understand that there is no longer a "diabetic" diet. Yes, there is a healthy way of eating, and perhaps I don't always give a crap, but that is my concern, not hers. And she isn't advising me as much as trying to tell me that she knows better than I do.

In addition, she is an addict to the worst--and I do mean worst--holistic scams in the world, and thinks that her way is the right way, no matter how ludicrous the schemes. Canokie pads? Ozone tent? Alkaline pH? Mmmm....no. Perhaps there is truth in herbal remedies in the past, but I have a hard time believing that some of these things are even legitimate. Even there, heart patients know they can't take Ma huang because it speeds up your heart too much, those taking St. John's Wort must be aware that mixing it with anti-depressants is not necessarily a good things, and let's face it--some things are just too good to be true. And the money she puts into these things is ridiculous! And yet she cries poor mouth every month, even though my bro is making good money.

And then there is the tale of two nephews....Billy, the older, is a party animal. He blows money like crazy and is always trying to come up with get-rich-quick schemes. His brother, Ryan, is more introverted, and has a sharp mind. Of course, to my SIL, Billy is a liar and a scoundrel, and Ryan is an angel. If Billy is an alcoholic, it's not something he needs to feel shame for--it's an illness, and it has been proven to be, in a large part, inherited. Considering how many alcoholics are in both our family and my SIL's family, it could easily be seen as something Billy has no real control over. I even told her the other night that she needs to tell Billy that she loves him and that she needs to tell him that the family will support him if he chooses to seek help. But she railed against me, and hung up. And yet, she herself won't admit that she drinks too much as well.

Anyhow, she also breaks down and cries at the drop of a hat, and won't listen to me what I tell her she needs to see a psychiatrist. It's understandable that her cancer might be depressing her, but she thinks, like way too many people in our world, that going to a psychiatrist is like telling the world you're a mental "defective." And that's not my view, either. I know most of us need guidance somewhere along the line, and that's normal. Instead of going on an anti-depressant, she takes Xanax instead, as if to say "I'm well, just anxious." And I do hope she doesn't take her Xanax when she's drinking her third glass of wine.

I just wanted to vent. I've been steaming under the surface for awhile. I understand when some people have to crush others in order to feel good about themselves, but it has gotten on my nerves more lately, and how she acts like such a snob about her family, and her family was/is even more dysfunctional than mine was! Like I explain about my feelings on members of the "religious wrong"--you can believe in anything you want to--the easter bunny, the earth being flat, or even creationism, just as long as you don't force me to see it your way by enacting unlawful legislation. I shouldn't have to bite my tongue around my SIL because I don't want to hurt her feelings--trust me, she hurts mine all the time, and I keep my mouth shut for the most part.
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elleng Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Sep-25-09 12:02 AM
Response to Original message
1. Sorry to hear about your aggravations, hyph!
The more I read, the more she sounds like my 'estrange' husb. Bad news. You are right (of course, you know that) and dealing with alcoholics is a THANKLESS task that falls on some of us.

IF you EVER have the chance, let Billy know what you can, and share some of this info, about which I've had some fights HERE recently!

http://www.lakesidemilam.com/

Best of luck to you.



:hi:
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mopinko Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Sep-25-09 09:14 AM
Response to Original message
2. i find myself just completely unable to deal with this kind of interpersonal
crap. i have low energy period, and i just refuse to blow it dealing with people who are a waste of time. i just don't bother with my extended family any more. i do miss some of them. but not many.
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Warpy Donating Member (1000+ posts) Send PM | Profile | Ignore Fri Sep-25-09 01:54 PM
Response to Reply #2
3. "That might work for you, but I'm too sick for it. I need real drugs."
Face it, nobody understands the kind of alphabet soup that leaves you looking more or less OK but wipes you out as far as energy goes. They're all going to try to fix you, and some of them are going to be rather brutal about insisting you snap out of it, pull yourself up by your bootstraps, and other useless advice. They just don't get it, they are incapable of getting it, and they never will.

Either you realize that's part of who they are and tune it all out, or you eliminate them from your life. I'm afraid that's the only real choice you have.

FWIW, the only people I've avoided are the hard core new age freaks who try to tell me I'm sick because on some deep spiritual level, I want to be.

You do have one tool in your box, you can trip her with your cane and blame it on her drinking.
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Altoid_Cyclist Donating Member (1000+ posts) Send PM | Profile | Ignore Wed Sep-30-09 12:01 PM
Response to Original message
4. I can't help you on the family problems, but I agree with the first three posters.
The most important thing is to take care of yourself and avoid any people who cause you more stress.

As far as the first part of your post, any doctor who has a problem with the patient educating themselves needs to be avoided if possible.
The concept that doctors are supreme beings and shouldn't be challenged is so archaic that I'm stunned by how many of my in-laws still abide by the notion. I and my wife have both come close to death because of doctors who expected us to act like morons and not question them or their expertise. All of the doctors that I see now understand and happily agree that the patient has to be their own advocate because it's the most medically sound way to reach a good conclusion.

I could rant all day on this subject but to be as succinct as possible;
nobody should ever leave 100% of the decision making to their doctor as far as I'm concerned.
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hyphenate Donating Member (1000+ posts) Send PM | Profile | Ignore Tue Nov-24-09 03:48 AM
Response to Original message
5. Sorry, guys
it took so long to get back to everyone on this post. As I told someone somewhere, I've become addicted to Facebook, and I just don't check the smaller forums as much as I probably should.

SIL has backed off a little. We now have, however, many issues we won't discuss, including my health choices, her bizarre thinking on holistic junk, and other issues. A couple of weeks ago, however, she made some provocative comments to me (in two different conversations), and I simply didn't call her for three or four days as a result. I now have it that if she wants to talk with me, she has to call me, as I am not in the mood to call her and just listen to her droning on and on.

Warpy, they're in Las Vegas, and I'm in Massachusetts now. I used to take my mom up to see them when I lived in L.A., but haven't seen any of them since 2006, when I had my mom and sister come up as well in Vegas. Distance between me and my SIL is a blessing!

Well, goodnight all!
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